BoxersRule
Active member
- Joined
- Feb 3, 2008
- Messages
- 37
- Reason
- Learn about ALS
- Country
- US
- State
- al
- City
- birmingham
I really hate being a burden here- I am making myself sooo sick and anxious I cant even concentrate on my baby that is about to be born in 6 1/2 weeks. I know I have been told by numerous people here my story does not sound like ALS but it is REALLY hard to believe my neuro and get it out of my head. Ive sat this way for 4 months now and I am exhaustedc from worry. I have NEVER been so sick from worry.
4 months of widespread fasciculations. (although my neuro could NOT get any to fire @ the time of my evalulation, she believed in my descriptions). I really dont have any spots that are hot/constant. Infact once I get settled they stop or if I am doing things they stop, or if I look for them they STOP! I had a normal neuro eval, strength test, reflex, coordination etc. all normal and great 2 1/2weeks ago. She gave me the stern diagnosed of bfs.
Through this whole process probably back through March- I've complained of off and on shoulder discomfort (and when it does happen, I have percieved weakness). When I saw my neuro she saw NO WEAKNESS. I was great w/ the diagnosed until my shoulder started bothering me again. I have lost no real strength and I find the pain comes and goes..but when I start focusing on it..I have the percieved weakness. I am at my wits end, I am making my self soo sick to my stomach with worry- constant about my left arm. If a UMN or LMN was present at the time of eval wouldn't I have had strength problems and increased or decreased reflexes?
I know I am a HUGE HYPERCHONDRIAC and I HAVE BAD GENERALIZED ANXIETY disorder. The sad part is... I cant take any meds for it right now b/c Im pregnant. I just sit home and dwell on my problems. (or make believe problems, whatever they are). I have stared at my shoulder and bicept constantly and no fasciculations that are constant- just my typical sporadic ones Ive had 4 months now..with a HUGEEEEEEEEE remission from 18 months ago when I first experienced this mess.
I prob wont get any answers with this post b/c I am such a mess and annoying- I just want to prepare for my baby and not think about this anymore- I keep coming back looking for I dont know what. NUMEROUS of you have told me "this is not als" etc..and even my doc "cheif of neurophysiology". So why cant i accept it?
4 months of widespread fasciculations. (although my neuro could NOT get any to fire @ the time of my evalulation, she believed in my descriptions). I really dont have any spots that are hot/constant. Infact once I get settled they stop or if I am doing things they stop, or if I look for them they STOP! I had a normal neuro eval, strength test, reflex, coordination etc. all normal and great 2 1/2weeks ago. She gave me the stern diagnosed of bfs.
Through this whole process probably back through March- I've complained of off and on shoulder discomfort (and when it does happen, I have percieved weakness). When I saw my neuro she saw NO WEAKNESS. I was great w/ the diagnosed until my shoulder started bothering me again. I have lost no real strength and I find the pain comes and goes..but when I start focusing on it..I have the percieved weakness. I am at my wits end, I am making my self soo sick to my stomach with worry- constant about my left arm. If a UMN or LMN was present at the time of eval wouldn't I have had strength problems and increased or decreased reflexes?
I know I am a HUGE HYPERCHONDRIAC and I HAVE BAD GENERALIZED ANXIETY disorder. The sad part is... I cant take any meds for it right now b/c Im pregnant. I just sit home and dwell on my problems. (or make believe problems, whatever they are). I have stared at my shoulder and bicept constantly and no fasciculations that are constant- just my typical sporadic ones Ive had 4 months now..with a HUGEEEEEEEEE remission from 18 months ago when I first experienced this mess.
I prob wont get any answers with this post b/c I am such a mess and annoying- I just want to prepare for my baby and not think about this anymore- I keep coming back looking for I dont know what. NUMEROUS of you have told me "this is not als" etc..and even my doc "cheif of neurophysiology". So why cant i accept it?