Isabella Harley
New member
- Joined
- Feb 6, 2009
- Messages
- 8
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2000
- Country
- UK
- State
- Scotland
- City
- Glasgow
Hello Friends,
was back a neurologist yesterday, first time in 3 years. For a few months nowI have noticed a marked heaviness on my left hand side a a severe pain in the right hand base of my skull. Basically not doing so good, very fatigued. The doctor is not happy with PLS label as he feels it leaves too much room for mistakes. He asks me lots about my family history and now my children. Cutting a long story short I have to go again for a motor conduction test, MRI and EMG and I'm really scared! Does aNyone else out there who's found that one side has got markedly worse than the other? I dont understand why he wants to test again after so much time! I saked did he think it was ALS, he said he didn't know. Not what I wanted to hear.
Anyway thanks for reading this and any help would be most appreciated. Hope you're all doing as well as you can
Big Hugs
Isabella
was back a neurologist yesterday, first time in 3 years. For a few months nowI have noticed a marked heaviness on my left hand side a a severe pain in the right hand base of my skull. Basically not doing so good, very fatigued. The doctor is not happy with PLS label as he feels it leaves too much room for mistakes. He asks me lots about my family history and now my children. Cutting a long story short I have to go again for a motor conduction test, MRI and EMG and I'm really scared! Does aNyone else out there who's found that one side has got markedly worse than the other? I dont understand why he wants to test again after so much time! I saked did he think it was ALS, he said he didn't know. Not what I wanted to hear.
Anyway thanks for reading this and any help would be most appreciated. Hope you're all doing as well as you can
Big Hugs
Isabella