Danielson
Active member
- Joined
- May 28, 2013
- Messages
- 88
- Reason
- Learn about ALS
- Country
- US
- State
- Illinois
- City
- Illinois
I posted here about a month ago. Have had issues since March and still no resolution.
A muscle disease is still in the back of my mind. Can anyone relate to these symptoms:
March: Noticed weakness in hands mostly left but spread to both arms and shoulders quickly.
April: Some twitching body wide.
Saw Neuro....some mild weakness in right leg. Hyper reflexes in legs.
June: EMG - In summary, this EMG/NCV study is remarkable for mild neuropathic changes suggesting a very mild diffuse polyneuropathy. Otherwise, the study was within normal limits and there is no evidence of anterior horn cell disease, radiculopathy, or myopathic process. (I was not experiencing fasciculations at the time of EMG test).
MRI: Several herniated discs in cervical spine (C-5 through C-7). Stenosis. Wedging and an old fracture at T-5.
July: Orthopedic surgeon says I have some spinal impingement but not any separation or cut off and wants me to do physical therapy before considering surgery. He states that my fasciculations and arm weakness are not due to my spine.
Since then I have become much weaker in my upper body with constant fasciculations everywhere. I get so weak that I just lay in bed like a mummy. Entire body is getting weaker but I've done little to no activity. Tried to go out and my legs are weak.
The orthopedic doctor stated that my arms felt "okay to him" strength-wise.
The neuro said no more testing but decided to have me see him again after he witnessed the fasciculations. He still thinks it is not ALS, but "can't rule it out because of the fasciculations'.
The weakness in my arms is my main concern. The fasciculations are a close second.
If I lay on my arm or sit so that there is pressure on my calves or feet...they twitch for hours. I am twitching somewhere at all times.
New symptom is chin weakness. My tongue seems okay but my chin and part of neck "FEEL" very week and numb. It's worse after talking a lot or eating. My swallowing seems okay.
I am in almost constant pain in my back.
Where to go and what to do next. I am practically bed-bound.
A muscle disease is still in the back of my mind. Can anyone relate to these symptoms:
March: Noticed weakness in hands mostly left but spread to both arms and shoulders quickly.
April: Some twitching body wide.
Saw Neuro....some mild weakness in right leg. Hyper reflexes in legs.
June: EMG - In summary, this EMG/NCV study is remarkable for mild neuropathic changes suggesting a very mild diffuse polyneuropathy. Otherwise, the study was within normal limits and there is no evidence of anterior horn cell disease, radiculopathy, or myopathic process. (I was not experiencing fasciculations at the time of EMG test).
MRI: Several herniated discs in cervical spine (C-5 through C-7). Stenosis. Wedging and an old fracture at T-5.
July: Orthopedic surgeon says I have some spinal impingement but not any separation or cut off and wants me to do physical therapy before considering surgery. He states that my fasciculations and arm weakness are not due to my spine.
Since then I have become much weaker in my upper body with constant fasciculations everywhere. I get so weak that I just lay in bed like a mummy. Entire body is getting weaker but I've done little to no activity. Tried to go out and my legs are weak.
The orthopedic doctor stated that my arms felt "okay to him" strength-wise.
The neuro said no more testing but decided to have me see him again after he witnessed the fasciculations. He still thinks it is not ALS, but "can't rule it out because of the fasciculations'.
The weakness in my arms is my main concern. The fasciculations are a close second.
If I lay on my arm or sit so that there is pressure on my calves or feet...they twitch for hours. I am twitching somewhere at all times.
New symptom is chin weakness. My tongue seems okay but my chin and part of neck "FEEL" very week and numb. It's worse after talking a lot or eating. My swallowing seems okay.
I am in almost constant pain in my back.
Where to go and what to do next. I am practically bed-bound.