banjanti
Member
- Joined
- Mar 6, 2016
- Messages
- 29
- Reason
- Friend was DX
- Country
- PL
- State
- mazowieckie
- City
- Warsaw
Hello everybody
Since my last post I've seen two neurologist. The first one did extensive clinical examination and said "100% not ALS"
I felt so much better, he said to redo the EMG
So I did, nerve conduction studies are normal, EMG is unfortunately not
We've spend few hours with my EMG neuro, she found active fibrilations in two muscles
She said motor neuron can be involved, the protocol is to observe
I've asked about ALS, she said it can be it bit too early to tell, she also said there are other MND with a slow progression
Also some viral episodes can cause it and my pain is inconsistent with MND, so it's either two things or not MND
She suggested seeing infection specialist
I have lyme tested, should get the results soon
I'm confused again, not sure what to do
Should I just wait and see if this progresses if it's not lyme?
Or there is something else that shows active fibrillation on EMG, or it's ALS/MND caught early before it shows clinical presentation?
Since my last post I've seen two neurologist. The first one did extensive clinical examination and said "100% not ALS"
I felt so much better, he said to redo the EMG
So I did, nerve conduction studies are normal, EMG is unfortunately not
We've spend few hours with my EMG neuro, she found active fibrilations in two muscles
She said motor neuron can be involved, the protocol is to observe
I've asked about ALS, she said it can be it bit too early to tell, she also said there are other MND with a slow progression
Also some viral episodes can cause it and my pain is inconsistent with MND, so it's either two things or not MND
She suggested seeing infection specialist
I have lyme tested, should get the results soon
I'm confused again, not sure what to do
Should I just wait and see if this progresses if it's not lyme?
Or there is something else that shows active fibrillation on EMG, or it's ALS/MND caught early before it shows clinical presentation?