shelleynshaggy
Distinguished member
- Joined
- Sep 2, 2009
- Messages
- 280
- Diagnosis
- 08/2009
- Country
- US
- State
- OH
- City
- Brunswick
Ok - so of course our PCP is on va-kay because we have had 2 unexpected doctor's visits this week.
First for me -- I went in to getthis stupid abdomen pain figured out (long boring story) BUT
First they send some med student to take my history... (really love recreating the wheel AGAIN) I try to politely smile while he tries to neatly pack my life into his oh-so-small box of knowledge. I listen as he tells me how to handle stress ...blah... blah ... blah while thinking where he can go shove his theories.
Then I get to listen as he is outside the room trying to explain what he thinks he heard to the "real" doctor. The "real" doctor comes in - now this man I have seen beforeand actually kinda like. He seems good and is nice with a kinda wry sarcastic sense of dry humor (in a good way.) That is until he seems to thinks he understands that ALS and FTD go hand-in-hand. He seems to think he knows that all ALS patients have dementia or other mental deficit and seems to disagree with me when I tell him that I really think the FTD is much more difficult to deal with at this point. My parting words were "look - I live this and don't understand it. Don't assume you do. "
Then today I took Jim to ER after he nearly fainted. His hydrostatic pressures are all over the place. (anywhere from 150/90 laying down - which is very high for him - to 100/72 while standing.)
First I get a triage person who confuses ALS with ACL (I don't want to know what she thought FTD was.) We got agreat nurse and ok doctor. They rehydrated Jim and sent some stupid idiot in to retake his pressures - which he did wrong. I informed the nurse that I didn't think there was much improvement and the repeat pressures were done wrong. She is obviously irritated (with the idiot) retakes the pressures. She thanks me and leaves. I hear her explaining to Mr. Idiot the correct method to which he argues "that is what I did." Ugghhh... He is speechless when the nurse tells him that the patient's wife told me you did it wrong. This is why I avoid ER.... 7 hours later all Jim got was a bag of saline, blood work and discharged with the same problem he walked in with... dizziness and funky pressures.
The ER doc says that the changes in blood pressures can be a result of the ALS. Anyone have an idea on this? Personally I don't even trust ER docs as far as I can throw them.
We are following up with neuro and got the info he wanted in the ER visit. However, I can't wait until the New Year when all the good docs get back and the low-men-on-the-totem-pole who have to cover the holidays are gone!
VENT OVER. ok .. now to move onward!
First for me -- I went in to getthis stupid abdomen pain figured out (long boring story) BUT
First they send some med student to take my history... (really love recreating the wheel AGAIN) I try to politely smile while he tries to neatly pack my life into his oh-so-small box of knowledge. I listen as he tells me how to handle stress ...blah... blah ... blah while thinking where he can go shove his theories.
Then I get to listen as he is outside the room trying to explain what he thinks he heard to the "real" doctor. The "real" doctor comes in - now this man I have seen beforeand actually kinda like. He seems good and is nice with a kinda wry sarcastic sense of dry humor (in a good way.) That is until he seems to thinks he understands that ALS and FTD go hand-in-hand. He seems to think he knows that all ALS patients have dementia or other mental deficit and seems to disagree with me when I tell him that I really think the FTD is much more difficult to deal with at this point. My parting words were "look - I live this and don't understand it. Don't assume you do. "
Then today I took Jim to ER after he nearly fainted. His hydrostatic pressures are all over the place. (anywhere from 150/90 laying down - which is very high for him - to 100/72 while standing.)
First I get a triage person who confuses ALS with ACL (I don't want to know what she thought FTD was.) We got agreat nurse and ok doctor. They rehydrated Jim and sent some stupid idiot in to retake his pressures - which he did wrong. I informed the nurse that I didn't think there was much improvement and the repeat pressures were done wrong. She is obviously irritated (with the idiot) retakes the pressures. She thanks me and leaves. I hear her explaining to Mr. Idiot the correct method to which he argues "that is what I did." Ugghhh... He is speechless when the nurse tells him that the patient's wife told me you did it wrong. This is why I avoid ER.... 7 hours later all Jim got was a bag of saline, blood work and discharged with the same problem he walked in with... dizziness and funky pressures.
The ER doc says that the changes in blood pressures can be a result of the ALS. Anyone have an idea on this? Personally I don't even trust ER docs as far as I can throw them.
We are following up with neuro and got the info he wanted in the ER visit. However, I can't wait until the New Year when all the good docs get back and the low-men-on-the-totem-pole who have to cover the holidays are gone!
VENT OVER. ok .. now to move onward!