Tracy500
Active member
- Joined
- Jan 28, 2015
- Messages
- 57
- Reason
- CALS
- Diagnosis
- 06/2014
- Country
- US
- State
- Wi
- City
- Madison
Today has been a rough day, the last 2 days he has only been able to want 1.5 cans of milk. That's only 12 oz all day. He refuses any more. He has been coughing a lot today, refuses couch assist. He has mostly slept all day to the point where I would stare at him making sure he is breathing. He seems uncomfortable today, can't do a straw anymore but wanted a sip of his soda. I used a syringe and do it that way. I had things to do today, but felt I couldn't leave him, so I cancelled all my plans and only went on super short runs to store, take and p/u my daughter from a bday party. I felt something was going to happen if I left him for more than 20 mins. Tonight he is agitated, but with all the meds, and morphine you think he's be sleeping. But no he's asking for things and yet I don't understand him. Words aren't words, so I guess and go down my list of things I think he may want. I'm tired, I need sleep, but tired in general of this disease and all that comes with it. I'm not sure how long we have. His feet are always cold and blue (have been for months) hands randomly turn cold then warm later. Urine is dark, little output and I saw like chunky cloudy stuff in the tubing?? Now what.