If you have children in the family affected by your ALS

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Nikki J

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Joined
Mar 22, 2012
Messages
16,469
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Check out hopelovescompany dot org. They have some educational materials you can requests but their bigger thing is summer camp. I belive grandchildren as well as children of PALS are eligible. There are 6 localtions. They also have virtual support groups
 
Thank you so very much for sharing this information. I am hoping that my children can go and be encouraged!
 
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