lisa g
Senior member
- Joined
- Apr 17, 2019
- Messages
- 707
- Reason
- PALS
- Diagnosis
- 04/2019
- Country
- US
- State
- FL
- City
- Fort Pierce
My name is Lisa and I was diagnosed 1 week ago with ALS. My neurologist is such a compassionate person, she cried with me while giving me the diagnosis . Her and her husband are a neurologist team. While they suspected ALS the EMG confirmed it. I would like to say that they were fantastic with her husband staying late to preform the EMG because I was getting ready to go out of town for 3 months.
I was put on Riluzole which seems to be helping. My doctor although was not happy that I would be away so long told me if I felt good go but if I felt any new symptoms to come back home. I am still mobile and walk 3 1/2 to 4 miles a day.
I'm still trying to wrap my head around this diagnosis and petrified of the unknown how it's going to progress.
I was put on Riluzole which seems to be helping. My doctor although was not happy that I would be away so long told me if I felt good go but if I felt any new symptoms to come back home. I am still mobile and walk 3 1/2 to 4 miles a day.
I'm still trying to wrap my head around this diagnosis and petrified of the unknown how it's going to progress.