CocoStark
New member
- Joined
- Feb 8, 2021
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AT
Hi Guys! First of all I want to apologize for even starting this thread, I went through so many others that where similar but somehow I'm still concerned.
On December 28th It started with a really strange headache only on my right side which I had for a week I think, it felt like someone stabbed me with a knife. This happened a couple times throughout the day, after a week it just dissapeared and I thought it was a really strange migraine... 2 weeks after that I got leg cramps in my right calves mostly when I was walking my dogs, it felt really weird and my veins popped out. As a flight attendant my first thought was a thrombosis but I never got any swelling. About 2 weeks ago I started twitching in my right leg, right above the knee, this went on for 3 or 4 days until it spread to my whole body , from feet to tounge but just when I'm sitting or laying down, 5 days into this situation I started to feel pain in my right thumb and also got a constant feeling of having something in my throat... speech is clear and there's no problem swallowing food.
When the twitching all over my body started I got so scared that I went to the hospitals neurologie department to get checked out. The doctor did a quick physical exam but didn't find anything, also there wasn't any visible twitching at the time. I was happy he didn't find anything but when I was about to leave he asked me to do some more testing and said something about "to rule out ALS"
Since than I'm a nervous wreck
I already had my blood taken and went for an NCS but for the EMG and MRI I have to wait another month. I showed the blood work to my regular doctor who's also a neurologist next to being a "family doctor" and I got even more confused, first he told me I can't have ALS because I'm so young (pretty lame since there are a lot of younger people suffering ) and he was overall just like no no no this can't be. Until he saw my tounge and was like oh wait , maybe come in for a EMG.
I'm really scared the first doctor used the word "ALS" like he would say maybe you have foot fungus
I know I have to do more testing but my question is does that sound like the beginning of ALS to someone ? I don't feel weak, I rode my stationary bike for 900 kilometers since the beginning of January, I think I lost 1 centimeter on my upper tight but no idea if it's on both sides or just one.
I'm not a native in English as I'm from Austria and a 30 years old female.
And thank you guys so so much for taking your time to read all this and helping so many people!
Greetings Coco
On December 28th It started with a really strange headache only on my right side which I had for a week I think, it felt like someone stabbed me with a knife. This happened a couple times throughout the day, after a week it just dissapeared and I thought it was a really strange migraine... 2 weeks after that I got leg cramps in my right calves mostly when I was walking my dogs, it felt really weird and my veins popped out. As a flight attendant my first thought was a thrombosis but I never got any swelling. About 2 weeks ago I started twitching in my right leg, right above the knee, this went on for 3 or 4 days until it spread to my whole body , from feet to tounge but just when I'm sitting or laying down, 5 days into this situation I started to feel pain in my right thumb and also got a constant feeling of having something in my throat... speech is clear and there's no problem swallowing food.
When the twitching all over my body started I got so scared that I went to the hospitals neurologie department to get checked out. The doctor did a quick physical exam but didn't find anything, also there wasn't any visible twitching at the time. I was happy he didn't find anything but when I was about to leave he asked me to do some more testing and said something about "to rule out ALS"
Since than I'm a nervous wreck
I already had my blood taken and went for an NCS but for the EMG and MRI I have to wait another month. I showed the blood work to my regular doctor who's also a neurologist next to being a "family doctor" and I got even more confused, first he told me I can't have ALS because I'm so young (pretty lame since there are a lot of younger people suffering ) and he was overall just like no no no this can't be. Until he saw my tounge and was like oh wait , maybe come in for a EMG.
I'm really scared the first doctor used the word "ALS" like he would say maybe you have foot fungus
I know I have to do more testing but my question is does that sound like the beginning of ALS to someone ? I don't feel weak, I rode my stationary bike for 900 kilometers since the beginning of January, I think I lost 1 centimeter on my upper tight but no idea if it's on both sides or just one.
I'm not a native in English as I'm from Austria and a 30 years old female.
And thank you guys so so much for taking your time to read all this and helping so many people!
Greetings Coco