Wynn
Member
- Joined
- Jun 12, 2009
- Messages
- 29
- Reason
- DX UMND/PLS
- Diagnosis
- 10/2008
- Country
- US
- State
- TX
- City
- Fort Worth
I went to an Alzheimer's disease/frontotemporal dementia specialist at the UT medical school today (my ALS/PLS specialist referred me). He is a neurologist and a psychiatrist. My wife and I were in the examining room with him for almost three hours.
To make a long story short, in addition to having essential tremor and primary lateral sclerosis, I also have primary progressive aphasia, a type of frontotemparal dementia. I guess my nervous system is shot.
I will eventually become mute. And, after that--I hope it a long time after that--I won't be able to communicate at all. I'm not on any kind of medication for it.
I'm going to participate in a study that tracks these types of diseases at the med school. There will periodic MRIs and examinations. And, I will donate my brain for study when I die.
Wynn
To make a long story short, in addition to having essential tremor and primary lateral sclerosis, I also have primary progressive aphasia, a type of frontotemparal dementia. I guess my nervous system is shot.
I will eventually become mute. And, after that--I hope it a long time after that--I won't be able to communicate at all. I'm not on any kind of medication for it.
I'm going to participate in a study that tracks these types of diseases at the med school. There will periodic MRIs and examinations. And, I will donate my brain for study when I die.
Wynn
