Status
Not open for further replies.

Wynn

Member
Joined
Jun 12, 2009
Messages
29
Reason
DX UMND/PLS
Diagnosis
10/2008
Country
US
State
TX
City
Fort Worth
I went to an Alzheimer's disease/frontotemporal dementia specialist at the UT medical school today (my ALS/PLS specialist referred me). He is a neurologist and a psychiatrist. My wife and I were in the examining room with him for almost three hours.

To make a long story short, in addition to having essential tremor and primary lateral sclerosis, I also have primary progressive aphasia, a type of frontotemparal dementia. I guess my nervous system is shot.

I will eventually become mute. And, after that--I hope it a long time after that--I won't be able to communicate at all. I'm not on any kind of medication for it.

I'm going to participate in a study that tracks these types of diseases at the med school. There will periodic MRIs and examinations. And, I will donate my brain for study when I die.

Wynn
 

Just J

Distinguished member
Joined
Oct 30, 2007
Messages
300
Reason
DX UMND/PLS
Diagnosis
01/2010
Country
US
State
MD
City
Havre de Grace
Wynn, I'm sorry to hear that. How is your speach today? Please keep us posted.
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
Wynn,

Wow! That just sucks! I'm hoping the progression slows way down for you and that it will be a long time before the brain donation takes place.
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,732
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
wynn, i am so sorry to hear your not doing so well.................it does suck.

my speech has got more slurred ofton this past year and my memory/cognitive function has been very steadly getting worse for a few years.

with help,support and good friends we can get through it.
we are all here to support you:)
 
Status
Not open for further replies.
Top