QuiggleFish
New member
- Joined
- Feb 23, 2009
- Messages
- 4
- Reason
- Other
- Country
- US
- State
- Georgia
- City
- Atlanta
Hello, I am a young man approaching my 25th year on this earth, who just may have MND... Hoping To God I Don't, but if I do I'm gonna fight the good fight...
And I just wanted to say that I've noticed a great many people who have lived with this disease for over 10 years! There is hope...obviously...but my questions are these:
1) I noticed the largest number of people who have lived over a decade are the people who were diagnosed at the youngest in their 40's... most being diagnosed in their 50's...what does this say for people being diagnosed under 40, especially under 30? a faster progression, perhaps?
2) I noticed a lot of the people who lived over a decade are really keen on vitamins, herbs, minerals etc. Does this stuff really help?
3) does moderate excercise help, especially in the young, when their bodies are more likely to build muscle more quickly (I'm answering my own question, but what the heck, would love to read another opinion...)
4) do ya'll find that a positive mental attitude adds on life, or adds to your life?
5) how long generally before communication becomes impossible... is this usually in the last few months of the disease, or can some people (non-Bulbar, let's say) all of a sudden lose their ability to speak... and say you live a longer while (a decade or so), how do you communicate with people where they can actually understand what you're saying, not just assuming? is there a way?
6) are there any forseeable working treatments in the near future? I'm talkin 4-6 years?
7) can equipment prolongue your life? if there is, how come more people aren't using it? and again, how do you communicate when on it?
I HOPE this doesn't sound silly, arrogant, stupid, oafish, barbaric, idiotic, condescending, assinine, ignorant etc.
I am genuinely intrigued, almost well obsessed because of the pending outcome of my diagnosed - I am nearly sure I have MND...but whatever, if these questions can be answered, it'd get me going in the right direction.
I'm too young to get this. It isn't fair. But who says life is fair? No other fatal disease is "fair" either... this one happens to be one of the worst... but if it can be fought, and if there's hope in the future for new medicine, I'm content to "hang in..."
Thanx So Much.
.Quiggle The Fish.
And I just wanted to say that I've noticed a great many people who have lived with this disease for over 10 years! There is hope...obviously...but my questions are these:
1) I noticed the largest number of people who have lived over a decade are the people who were diagnosed at the youngest in their 40's... most being diagnosed in their 50's...what does this say for people being diagnosed under 40, especially under 30? a faster progression, perhaps?
2) I noticed a lot of the people who lived over a decade are really keen on vitamins, herbs, minerals etc. Does this stuff really help?
3) does moderate excercise help, especially in the young, when their bodies are more likely to build muscle more quickly (I'm answering my own question, but what the heck, would love to read another opinion...)
4) do ya'll find that a positive mental attitude adds on life, or adds to your life?
5) how long generally before communication becomes impossible... is this usually in the last few months of the disease, or can some people (non-Bulbar, let's say) all of a sudden lose their ability to speak... and say you live a longer while (a decade or so), how do you communicate with people where they can actually understand what you're saying, not just assuming? is there a way?
6) are there any forseeable working treatments in the near future? I'm talkin 4-6 years?
7) can equipment prolongue your life? if there is, how come more people aren't using it? and again, how do you communicate when on it?
I HOPE this doesn't sound silly, arrogant, stupid, oafish, barbaric, idiotic, condescending, assinine, ignorant etc.
I am genuinely intrigued, almost well obsessed because of the pending outcome of my diagnosed - I am nearly sure I have MND...but whatever, if these questions can be answered, it'd get me going in the right direction.
I'm too young to get this. It isn't fair. But who says life is fair? No other fatal disease is "fair" either... this one happens to be one of the worst... but if it can be fought, and if there's hope in the future for new medicine, I'm content to "hang in..."
Thanx So Much.
.Quiggle The Fish.
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