Lory
Member
- Joined
- Aug 27, 2013
- Messages
- 13
- Reason
- Loved one DX
- Country
- US
- State
- MD
- City
- Baltimore
My father was diagnosed with AlS in early 2013, limb-onset. Started with weakness in his arms. Fast forward a year, and he has lost about 80% of the use of his arms. His voice and swallowing are still very strong, and legs are strong. He says he has been having fasiculations in his legs for a long time, but they haven't increased much. He takes long walks with my mom each morning and doesn't need a cane.
I got engaged on December 24th and am super torn about when to have my wedding. My mom would like it to be this year because she is afraid my dad's progression could speed up and we just don't know where he will be symptom wise. My dad is adamant that he does not want us to do the wedding this year if he is the only reason for doing it. In a perfect world I would love to get married in early spring 2015. My fiancé is starting a new job this year, we have to move in the next few months......
My dad is 67 and I read that the average lifespan for diagnosis after age 65 is only 2 years! However it seems my dad is progressing relatively slowly. I would never forgive myself if I set the wedding for a year and 5 months from now, and he passed away in that time. If a progression starts slowly as my dad's has, can it suddenly speed up? The doctors won't really tell him anything. The only gauge we have is him comparing himself to others in his support group that were diagnosed at roughly the same time. He seems to be progressing more slowly than most.
I admire every PAL and CAL so much on this forum and reading the posts is so helpful. I just want to do the right thing for my dad and for my family. Any advice would be so appreciated
I got engaged on December 24th and am super torn about when to have my wedding. My mom would like it to be this year because she is afraid my dad's progression could speed up and we just don't know where he will be symptom wise. My dad is adamant that he does not want us to do the wedding this year if he is the only reason for doing it. In a perfect world I would love to get married in early spring 2015. My fiancé is starting a new job this year, we have to move in the next few months......
My dad is 67 and I read that the average lifespan for diagnosis after age 65 is only 2 years! However it seems my dad is progressing relatively slowly. I would never forgive myself if I set the wedding for a year and 5 months from now, and he passed away in that time. If a progression starts slowly as my dad's has, can it suddenly speed up? The doctors won't really tell him anything. The only gauge we have is him comparing himself to others in his support group that were diagnosed at roughly the same time. He seems to be progressing more slowly than most.
I admire every PAL and CAL so much on this forum and reading the posts is so helpful. I just want to do the right thing for my dad and for my family. Any advice would be so appreciated