When the doctors were first evaluating me, they thought I may have ALS but because my symptoms were developing over several years they weren't sure. I was in the process of planning a trip to Scotland and I was suddenly in dismay as to whether to go at all...why spend the money on myself if I didn't know how long I would be around? It was as if I had lost my self worth. I told this to my neurologist and he shook his head and said GO! Go and do what I had always wanted to do. Well, I did go and I am SO glad I did. Last year I was finally diagnosed with PLS at Johns Hopkins in Baltimore, Maryland. It is similar in symptoms to ALS as it involves the voluntary muscle deterioration but NOT the involuntary muscles such as breathing and heart. Sometimes, it can develop into ALS but who can tell if that will happen? It is treated with the same medicines as ALS, though. I hope you all take that trip just as you have planned and have a wonderful and memorable time!
Sincerely, DBowman