I think I have ALS

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ShiftKicker

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Hello- there's only so many ways the folks here can tell you this isn't the right forum to continue to list your symptoms. While your symptoms are obviously very concerning to you, this particular forum is not suitable- and you will need to go back to your doctor with your list of symptoms to try to work out what it might be. You do not report the array of symptoms a specialist would consider worrisome for ALS, which is great news.

Continuing to post after members have told you there is no reason for you to be here means you are unable to take in what people here are telling you and are fixated on ALS. There are many reasons for the issues you list above. Please work with your doctor to track down what it might be.
 
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I went to my neuro appointment. I did not display any clinical weakness. reflexes were normal although I don’t believe she checked the ALS ones. I have tongue fasics all over and it’s quite often like all day long. No one has said antyhing about my speech at all they said I sound normal. I was referred to an EMG. Do you think I am ok to skip the EMG without clinical weakness?
 

lgelb

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I do, but you're the one that needs to be reassured so you can get on with life. If the appointment did it, great. Did the neuro state a reason for the EMG or was it for reassurance?

If you opt for the EMG, since there are sicker people waiting for them, please be prepared to accept the findings. If you are not, it's a waste of a time slot.
 

Bestfriends14

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What are "ALS relexes"? Neurological tests are neurological tests and there certain ones that help form a picture of ALS, should there be suspicions. You, luckily, evidence none of these.

You say your friends cannot detect if your speech sounds different, which means you think it does. In ALS, it is the person who has ALS who cannot detect speech changes. In the case of my husband, he's started to slur his speech terribly in the last two weeks. I won't tell him, though, because he cannot hear it. That will devastate him as he loves a good meal.

You don't have ALS. Be grateful, will you?
 
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No she did not state the reason for the EMG. I think it was because I told her I have a lot of numbness and tingling in the hands and feet at times.
 
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What do you mean by “accept the findings” as in, they may find ALS?
 

Bestfriends14

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Accept the findings as in, you do not have ALS.
 
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Would ALS show clinical weakness this early and abnormal reflexes?
 

lgelb

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There is no way that your symptoms add up to ALS, and that's the question we discuss in this "Could It Be" forum. P/CALS are well aware of how ALS manifested in their cases; they are not going to rehash it for you. You can search and read further if it helps you, but it's more likely to do harm.

We're done here. I'm closing this thread so you can get the help you need, which is not here; please do not start another.
 
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