comfortable with ALS
Distinguished member
- Joined
- Sep 24, 2007
- Messages
- 111
- Reason
- Other
- Diagnosis
- n/a
- Country
- US
- State
- mi
- City
- st.clair shores
Hey guys just woke up from a crazy night...my left hand feels weeker it always falls asleep on me and i wont even be doing anything then it takes like 10 min to get it back to normal...this is only my left hand and it hurts so bad....my tounge countinues to twitch daily and the fasiculations are more and more pronounced. Yes ive had 5 emgs within 7 months but i guess we cant rely on these you basically have to be limping in the docs office before anything is noted. I love that my docs say no als but i hate that my symptoms are getting worse. I hate going through this pregnant iam so miserable and i no the baby is to iam trying to stay positive...i thought it was going to be bfs but i guess my docs are wrong. Als says no sensory problems but it seems as though a lot of people on here have that sensory problem. I have no noted atrophy as of yet but i think there is a dent in my tounge. I was also told by als specialist you cant feel your tounge twitch but i can feel mine, so can other people. And my whole vision thing i dont care i no thats not normal extra protein in my eyes 24 7 isnt als a protein disease i dont think the docs think i have als because of my age but there are people my age who have it. There is a girl right now who is 29 who cant even hold her baby she just had its so sad and the docs said if she would have been in her 60s her diagnosed would have come sooner. Helpkeri.com. Thanks for listening Jenny