i really need some guidance

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Yeah, your not a jerk. It is good to vent. This is the place to do it. Everyone here I am sure is more than willing to help you find the right way. Thanks for sharing your feelings with us! Don't be shy.
 
Hi there.....Please do not be hard on yourself. I've been going through this with my sister going on 7 years, and I still don't understand it. New symptoms pop up all the time....it's horrible. As far as you feeling guilty, or feeling like a jerk, I have felt those feeling many times or the last 7 years. I remember at one point, I didn't even want to go out of the house in fear of having fun. I felt so guilty that my younger sister was going through this and I was so healthy. You, being on this forum and asking questions is proof enough that you are such a good person and care so much...don't ever doubt that. It's important to ask tons of questions and research as much as you can. For me, the more I understood about this awful disease, the calmer I felt....and thus was able to help my sister with much more patience and understanding. All the best....my prayers go with you......Laurie Staller
 
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