mysisterskeeper
Active member
- Joined
- Sep 14, 2012
- Messages
- 44
- Reason
- Loved one DX
- Diagnosis
- 00/2000
- Country
- OH
- State
- ohio
- City
- columbus
This has been a whirlwind of sorts. No time for sleep means taunting my epilepsy. Lets not mention my own health. I gotta figure out how to take care of us both. I try to remember my medicine everyday, but I never forget hers. So many false starts (what I call it when I think she is dying right then), but I am happy for each false one because the real mccoy will be here soon enough. I got some stuff off my chest today. Usually I keep my mouth shut. I haven't been keeping my mouth shut much lately.
I have had to fire a nurse, be adamant about who can stay in her room during hospice nursing visits and which nurses may not because of behavior that I feel is not focused on my sister. This time with hospice is not an opportunity for you to talk nurse ideas, ask the same damn question you asked the last hospice nurse, or ignore my sister's needs because you are too busy trying to hear what the hospice nurse is saying on the phone. I choose which members on her team sit on the bench and when based on how she feels and what I see. I don't care if they like it. Because her health and best interest are what matters. I need a team that will treat her needs and symptoms and not be so focused on numbers that they lose vision of what the team is here for.
I get angry when she is in pain. I have made sure that orders are in place to avoid that. I will not put up with any nurse asking her to wait 40 minutes for her scheduled pain med when she can have her hourly break thru. I do not need someone trying to get her to stall out and be in pain when that alone can affect her breathing and anxiety level.
I am an emotional wreck, and it is showing. I am not eating right. I am not sleeping. :-( My acne is worse. It was bad enough being 42 with acne. Try 42 with acne from stress. Like acne even matters...
I have had to fire a nurse, be adamant about who can stay in her room during hospice nursing visits and which nurses may not because of behavior that I feel is not focused on my sister. This time with hospice is not an opportunity for you to talk nurse ideas, ask the same damn question you asked the last hospice nurse, or ignore my sister's needs because you are too busy trying to hear what the hospice nurse is saying on the phone. I choose which members on her team sit on the bench and when based on how she feels and what I see. I don't care if they like it. Because her health and best interest are what matters. I need a team that will treat her needs and symptoms and not be so focused on numbers that they lose vision of what the team is here for.
I get angry when she is in pain. I have made sure that orders are in place to avoid that. I will not put up with any nurse asking her to wait 40 minutes for her scheduled pain med when she can have her hourly break thru. I do not need someone trying to get her to stall out and be in pain when that alone can affect her breathing and anxiety level.
I am an emotional wreck, and it is showing. I am not eating right. I am not sleeping. :-( My acne is worse. It was bad enough being 42 with acne. Try 42 with acne from stress. Like acne even matters...