Hello,
I have been registered on this site for awhile, but this is my first thread.
I need some direction. Recently, my husband was diagnosed in Feb 07 and has declined very quickly. He now has a trach and is on a ventilator. He has been in the hospital since Nov 23. We want him to come home, but have no idea how to get care for him during the day. I have taken the vent training along with some friends and family. We had a caregiver lined up for the daytime while I work, but she backed 2 days ago.
I do understand that if I can't get him care during the day, he would have to go to a facility. I don't want this. He has already said that if he has to go, he might as well just go to hospice and be done. I don't want that either. He's only 40 and we have only been married for 15 months.
We really want him to come home. I know I can get him general care, but insurance won't pay for someone to care for the trach and vent.
What options do I have.
Thanks for listening
I have been registered on this site for awhile, but this is my first thread.
I need some direction. Recently, my husband was diagnosed in Feb 07 and has declined very quickly. He now has a trach and is on a ventilator. He has been in the hospital since Nov 23. We want him to come home, but have no idea how to get care for him during the day. I have taken the vent training along with some friends and family. We had a caregiver lined up for the daytime while I work, but she backed 2 days ago.
I do understand that if I can't get him care during the day, he would have to go to a facility. I don't want this. He has already said that if he has to go, he might as well just go to hospice and be done. I don't want that either. He's only 40 and we have only been married for 15 months.
We really want him to come home. I know I can get him general care, but insurance won't pay for someone to care for the trach and vent.
What options do I have.
Thanks for listening