stacey76
Member
- Joined
- Sep 19, 2007
- Messages
- 13
- Reason
- Loved one DX
- Diagnosis
- n/a
- Country
- US
- State
- sd
- City
- Sturgis
I have been caring for my fiance who was diagnosed with als about 6yrs ago and he is 40 yrs old. I care for him at home but we met in the nursing home that I worked at and fell in love. I love him more than you could imagine but he has made caring for him so difficult on me and even my family who also tries to help as he has spent a lifetime of pushing people away and has no family as he has either pushed them out of his life or they him. He is in an electric wheel chair which he runs with head and hand controls so runs around our small town alot to get out and about but uses his disability against me. Whenever we have a disagreement or he gets mad at me because I can't understand him he will run to social services or the hospital and tell them I am abusing him but after he does this and they are ready to put him in a nursing facility again he back pedals and says he lied and wants to come home. Social Services and the hospital don't even beleive him anymore and he even got me fired from my job telling lies and then almost did a second time with my new job tell I had my job talk with doctors etc. about him.
I have been reading about borderline personality disorder too and it's like reading a book about him so I believe he also has this from previous childhood expierences.
We have had a child together because I love him and he wanted to have one and he is a year old now and I am afraid of how he is going to be with his son. He can be sooo great one moment and then another time he will purposly hollow to wake up the baby because it upsets me. Most nights unless having a really bad night he will only wake me to turn him about 4 times a night and gets drinks and so on at those times but when he's mad at me about something he has me up constantly and I mean every 5 to 10 mins because I wrote down one night each time he woke me.
I don't know what to do ...he's jealous of anytime I spend with my family and has chased away all of my friends.
I love him and have no problems caring for him and yes i'm tired and I get frustrated but why does he do the extra mean things to me? Will it ever stop?
I am mentally spent and physically....I am soooo depressed... I cry when I go to the super market for no reason. I have never been like this in my life and I don't want my son to grow up thinking this is who I am. I have no one to talk to and I feel like crawling in a hole .
Whenever I talk about maybe going into a nursing home with him he cries and begs me not to give up on him but he continues to be so mean to me.
I need some advice....someone to tell me i'm not alone....someone to care.
Stacey
I have been reading about borderline personality disorder too and it's like reading a book about him so I believe he also has this from previous childhood expierences.
We have had a child together because I love him and he wanted to have one and he is a year old now and I am afraid of how he is going to be with his son. He can be sooo great one moment and then another time he will purposly hollow to wake up the baby because it upsets me. Most nights unless having a really bad night he will only wake me to turn him about 4 times a night and gets drinks and so on at those times but when he's mad at me about something he has me up constantly and I mean every 5 to 10 mins because I wrote down one night each time he woke me.
I don't know what to do ...he's jealous of anytime I spend with my family and has chased away all of my friends.
I love him and have no problems caring for him and yes i'm tired and I get frustrated but why does he do the extra mean things to me? Will it ever stop?
I am mentally spent and physically....I am soooo depressed... I cry when I go to the super market for no reason. I have never been like this in my life and I don't want my son to grow up thinking this is who I am. I have no one to talk to and I feel like crawling in a hole .
Whenever I talk about maybe going into a nursing home with him he cries and begs me not to give up on him but he continues to be so mean to me.
I need some advice....someone to tell me i'm not alone....someone to care.
Stacey