4jcobb
Active member
- Joined
- Sep 18, 2013
- Messages
- 31
- Reason
- Learn about ALS
- Country
- US
- State
- pa
- City
- philadelphia
I need help. my family is very concerned and I'm am very scared. I have three lil ones and I'm only 28. so I need to know if I need to get this in place. thank you for advance for whoever responds
it started with neck pain that I had for a few months now.. the second week in July I had cut my finger wit to the hospital and got a tetnus shot. the next following week my back start severely hurting . it then traveled to my wasting legs arms and hands and feet. two days later I started to have a tingling feeling in my body and then started the twitching and muscle loss. I was 184 and now I'm 170. that night my body starting twitching everywhere and it see the twitching was causing the muscle loss.i was a real built type of guy now I can feel my ribs and my legs and arms are toothpicks. no one can explain it.i also lost muscle in wierd spots like my eyelids, sides of my mouth lips and top of head..
I went to four specialist a rheumy,gatsro , heamtologist and neurologist.. rhenium is negative for everything.gastro I just did a ct scan abdomin yesterday, heamtologist was cause I'm anemic but have good b12 and iron and my serum protien electrophorus had a 1.9 on gamma gobulin level, the neurologist in Bensalem pa did a emg and ncv and all was clear he said. when he did the emg he stuck in needs but did t ask me to clinch my fist or feet or nothing..it was only ten mins for emg
I'm so scared so lost and family is so lost they don't even wanna believe me.i lost muscle everywhere and is twitching everywhere..please help me what else would cause this? or domi have it and they just won't tell me...please help
it started with neck pain that I had for a few months now.. the second week in July I had cut my finger wit to the hospital and got a tetnus shot. the next following week my back start severely hurting . it then traveled to my wasting legs arms and hands and feet. two days later I started to have a tingling feeling in my body and then started the twitching and muscle loss. I was 184 and now I'm 170. that night my body starting twitching everywhere and it see the twitching was causing the muscle loss.i was a real built type of guy now I can feel my ribs and my legs and arms are toothpicks. no one can explain it.i also lost muscle in wierd spots like my eyelids, sides of my mouth lips and top of head..
I went to four specialist a rheumy,gatsro , heamtologist and neurologist.. rhenium is negative for everything.gastro I just did a ct scan abdomin yesterday, heamtologist was cause I'm anemic but have good b12 and iron and my serum protien electrophorus had a 1.9 on gamma gobulin level, the neurologist in Bensalem pa did a emg and ncv and all was clear he said. when he did the emg he stuck in needs but did t ask me to clinch my fist or feet or nothing..it was only ten mins for emg
I'm so scared so lost and family is so lost they don't even wanna believe me.i lost muscle everywhere and is twitching everywhere..please help me what else would cause this? or domi have it and they just won't tell me...please help