- Feb 16, 2022
Just 2 weeks ago my beautiful mother lost her battle with ALS. It quickly (diagnosed in April 2021) stole her voice, her joy, her future, her love of food, her beloved volunteer job, her ability to hold a book (which i think devastated her the most), her limbs, her hope, then her breath. I miss her so much it’s unbearable. I miss the her from “before”, and i even miss my “momma baby” that i took care and tended to her every need until the very end. It was hard, i didn’t think i could do it, i cried a lot, but i would pivot and adapt and adjust, then keep on keepin on. She proved her Dr wrong and even with bulbar onset she could swallow until the very end (she refused a feeding tube). I miss this strong, successful, beautiful, loving soul who loved me more than anyone ever will and vice versa. A mother’s love is eternal. I pray for a cure and will help to fight so no one has to go thru this battle. Thank you forum writers, in the wee hours this place was a Godsend for me. A place to read about shared experiences, tips, and recommendations. Thank you all!!