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I lost my beautiful mother

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Bleue

New member
Joined
Feb 16, 2022
Messages
8
Reason
CALS
Diagnosis
04/2021
Country
US
State
VA
City
Alexandria
Just 2 weeks ago my beautiful mother lost her battle with ALS. It quickly (diagnosed in April 2021) stole her voice, her joy, her future, her love of food, her beloved volunteer job, her ability to hold a book (which i think devastated her the most), her limbs, her hope, then her breath. I miss her so much it’s unbearable. I miss the her from “before”, and i even miss my “momma baby” that i took care and tended to her every need until the very end. It was hard, i didn’t think i could do it, i cried a lot, but i would pivot and adapt and adjust, then keep on keepin on. She proved her Dr wrong and even with bulbar onset she could swallow until the very end (she refused a feeding tube). I miss this strong, successful, beautiful, loving soul who loved me more than anyone ever will and vice versa. A mother’s love is eternal. I pray for a cure and will help to fight so no one has to go thru this battle. Thank you forum writers, in the wee hours this place was a Godsend for me. A place to read about shared experiences, tips, and recommendations. Thank you all!!
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
4,884
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
You have paid a wonderful tribute and your love for your mum shows in every word. I am so sorry for your and your family's loss.
 

sassy

Active member
Joined
Apr 22, 2018
Messages
98
Reason
CALS
Diagnosis
02/2018
Country
US
State
RI
City
East Greenwich
Sorry for your loss. Some days are tough-may her memory comfort you.
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
11,187
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Your mom sounds like a great person. Thank you for staying with her all the way through -- wishing you peace and strength. It will get better, and she will always support you in your life.

Best,
Laurie
 

Mary2

Distinguished member
Joined
May 1, 2021
Messages
203
Reason
CALS
Diagnosis
04/2021
Country
US
State
GA
Lovely tribute to your Mom...may you and your family find peace.
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
261
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
City
Lenexa
A wonderful tribute to your Mother. Our deepest sympathy to you and your family. May she fly free.
 

[email protected]

Distinguished member
Joined
Jan 3, 2016
Messages
329
Reason
PALS
Diagnosis
11/2015
Country
US
State
Iowa
City
Iowa City
A touching remembrance of your mother. Condolences and wishing you peace.

Ed
 

gremeljon

New member
Joined
Mar 14, 2022
Messages
1
Reason
CALS
Diagnosis
03/2022
Country
US
State
WI
City
Tomah
I am so sorry for your loss. I also lost my dad to Bulbar ALS on March 27th.
 

vltsra

Senior member
Forum Supporter
Joined
Nov 12, 2015
Messages
613
Reason
CALS
Diagnosis
11/2015
Country
US
State
CA
City
San Diego
What a loving tribute to your mother. Thank you for sharing your love for her. Wishing you comfort in your memories of her.
 
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