Kristina1
Senior member
- Joined
- Jan 26, 2017
- Messages
- 822
- Reason
- PALS
- Diagnosis
- 03/2017
- Country
- US
- State
- MA
- City
- Grafton
Hi everyone. I was just diagnosed on Friday. I'm 31 years old, married with three young children. My husband and I had let our respective parents know that ALS was suspected, and when I received the diagnosis we gave them that update.
Over the weekend and through today I have been getting the calls from my immediate family. I have three brothers. I don't want to talk about my feelings with them or my parents. Their worry and fear and sadness is too much for me to handle. I am keeping my husband as my primary feelings confidante, and staying reserved with the rest of my family.
I keep hearing "You are allowed to be sad about this." I want to say: "Um, I know I'm allowed to be sad and I AM SAD. But I don't want to be sad with you!" Of course, I don't say that because I don't want to be a jerk.
I guess this is really just a vent. My husband asked me to let him take over communications with family and is encouraging me to hand my cell to him when I see it's them.
Over the weekend and through today I have been getting the calls from my immediate family. I have three brothers. I don't want to talk about my feelings with them or my parents. Their worry and fear and sadness is too much for me to handle. I am keeping my husband as my primary feelings confidante, and staying reserved with the rest of my family.
I keep hearing "You are allowed to be sad about this." I want to say: "Um, I know I'm allowed to be sad and I AM SAD. But I don't want to be sad with you!" Of course, I don't say that because I don't want to be a jerk.
I guess this is really just a vent. My husband asked me to let him take over communications with family and is encouraging me to hand my cell to him when I see it's them.