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Tonya

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carthage
I just recently got on this web site and so far have learned more than my dad has told me...There still are things i don't understand...like this test EMG..what is it...My dad is a very private person and feelslike if i need to know he will tell me..He is currently going to a all natural Doctor which i am leary of....Should i talk him into going to a "real" doctor or let him continue seeing her... He has so much trouble breathing and swallowing but she stills gives him 30 pills to take everday...Please give mesome advice..i want the best for my daddy.
 

Rhonda

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PALS
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GA
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Mableton
Hey and welcome to the forum. In my opinion I think your dad should try to find a ALS clinic and make an appt. 30 pills is alot to be taking. Applesauce is the best thing for
taking pills. It makes it so much easier to swallow them. I got that info. from speech
therapist at ALS clinic. The clinic has alot to offer ALS patients. I had 3 emg's before I was diagnosed. Someone else will be better at telling you exactly what it is. I don't have all the proper words to explain it. I just know it requires needles and some kind
of eletric shock. Rhonda
 

quadbliss

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Hi Tonya,

If your Dad is having trouble breathing, he probably needs a Bi-Pap machine. This will make him more comfortable, and also allow his breathing muscles to rest, thereby extending their usefulness. This is basic ALS treatment. If your Dad's Doctor is not recommending this, you should seek out an ALS specialty clinic.

Mike
 

Tonya

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Loved one DX
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US
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texas
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carthage
Rhonda said:
Hey and welcome to the forum. In my opinion I think your dad should try to find a ALS clinic and make an appt. 30 pills is alot to be taking. Applesauce is the best thing for
taking pills. It makes it so much easier to swallow them. I got that info. from speech
therapist at ALS clinic. The clinic has alot to offer ALS patients. I had 3 emg's before I was diagnosed. Someone else will be better at telling you exactly what it is. I don't have all the proper words to explain it. I just know it requires needles and some kind
of eletric shock. Rhonda

Rhonda,
thanks for ur advice, all his pills are is vitmains. and i just don't think they r doing anything for him..I am at my wits end....i am not sure how to talk to dad cause like i said he is very private. But i do wantthe best for him...
 

Tonya

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Loved one DX
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texas
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carthage
quadbliss said:
Hi Tonya,

If your Dad is having trouble breathing, he probably needs a Bi-Pap machine. This will make him more comfortable, and also allow his breathing muscles to rest, thereby extending their usefulness. This is basic ALS treatment. If your Dad's Doctor is not recommending this, you should seek out an ALS specialty clinic.

Mike
Hi Mike,

What is a Bi-Pap machine? See Daddy is not going to any specialst. just what i call a quack...she says she can cure him and dad believes her......Please tell me what u can about this machine please.. He can't even lay flat anymore. he can say a few words then he has to catch his breath... Thanks for all ur help
 

Tonya

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Loved one DX
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US
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texas
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carthage
Al said:
http://www.stjohnsmercy.org/healthinfo/test/neuro/TP012.asp

Hi Tonya. Try this site. It's not too technical and gives a good explanation of the EMG.
AL.


Hi Al,
Thanks so much for ur help. I feel silly that i don't know these things. But Daddy doesn't really like to talk about this with me....Idon't even know if he knows about all this..Onceagain thanks
Tonya
 

patricia1

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Sep 18, 2006
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PALS
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newjersey
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lopatcong NJ
fIRST OF OFF GET DAD AWAY FROM THAT QUACK a BIPAP is a machine that you use for breahing It rest your lung by breathing for them the air flows into your lungs with presure You can use it at night only or 24/7 He will have more energy and it will give his lungs a rest while he is on it.may even prolong his life and delay a ventilator Pat
 

Tonya

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Loved one DX
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US
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texas
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carthage
patricia sciarrino said:
fIRST OF OFF GET DAD AWAY FROM THAT QUACK a BIPAP is a machine that you use for breahing It rest your lung by breathing for them the air flows into your lungs with presure You can use it at night only or 24/7 He will have more energy and it will give his lungs a rest while he is on it.may even prolong his life and delay a ventilator Pat


I have tried and tried to get him to go to a real Doctor. but he says se gives him hope..I think people like that will pay one of these days..If she could cure him i would think there would be no ALS....So a BIPAP is not a ventilator?
 

Laurie Lister

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Ottawa
Hope

Dear Rhonda

I understand about wanting a miracle. My husband had a friend who was very religous and she kept telling him how he would be healed. Its wrong to give someone false hope, she does not come around anymore because my husband is getting worse. Your father needs to see a specialist and soon.

Laurie Lister
 

quadbliss

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Messages
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PALS
Diagnosis
07/1998
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US
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California
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Benicia
Hi Tonya,

A Bi-Pap is similar to a vent, but it is "non-invasive". That means it doesn't require any surgery to connect to your body. It connects using a mask over your nose, or nose and mouth. It should allow your Dad to sleep comfortably and rest his lungs. This will give him more energy during the day.

Mike
 
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