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samsudin

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So about 8 months ago i started experiencing muscle weakness in my legs and some pain and fasciculations. I didn't think much of it and thought it was due to overtraining in the gym. A couple of months later after some rest the symptoms didn't subside and spread to my arms and then i started experiencing dysphagia. Naturally i was concerned and went to the neuro. He suspected ALS but wanted to do an EMG test to make sure. It turned out normal so he said ALS was ruled out, although he didn't know what's wrong with me and told me to come back in 2 months. 2 months later my symptoms were much worse as i started experiencing atrophy in my calves and muscle cramps and soreness everywhere along with the initial symptoms. Did an EMG again, normal! I also had an MRI (normal) and blood test (also normal), but my neuro agrees that he notices weakness and significant atrophy in my 4 limbs, as well as hyperreflexia. Last week i did an EMG again and guess what? normal! My neuro told me that it was probably some form of myopathy and sent me to physiotheraphy and just "wait and see how it develops".

The symptoms that i'm experiencing are:
- footdrop on both feet (confirmed by neuro)
- weakness on 4 limbs (confirmed by neuro)
- random fasciculations
- dysphagia
- very noticeable atrophy in my calves, quads, biceps, and forearms (confirmed by neuro)
- hyperreflexia (confirmed by neuro)
- muscle pain in various areas

So does any of you experience a similar thing, and is it possible to have 3 CLEAN EMGS while having these symptoms if you have ALS? It is very strange because as far as i know EMG was supposed to detect very early if there's something wrong with you..
 

samsudin

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1 more thing, i feel like my legs are.... vibrating. It is especially noticeable when i'm trying to sleep. It's like i'm sleeping on a vibrating bed
 

Nikki J

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You need a second opinion with a neuromuscular specialist good luck
 

Nuts

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You need a second opinion with a neuromuscular specialist good luck


You have it on good authority--see a neurouscular specialist (not all neuros are).
 

Atsugi

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is it possible to have 3 CLEAN EMGS while having these symptoms if you have ALS? It is very strange because as far as i know EMG was supposed to detect very early if there's something wrong with you..

This is not any ALS I've ever heard off, but there is definitely something wrong. Be glad the EMG has ruled out ALS. Come back and let us know when you get a definitive diagnosis.
 

samsudin

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went to a neuromuscular specialist yesterday, he said there was no dennervation and reinnervation so he didn't think ALS was causing my problems. The EMG didin't even detect fasciculations (which i am experiencing a lot of). I am only 19 years old and have no family history of sporadic ALS after all, so i guess my chances of getting ALS are very slim. What bothers me is that my symptoms are incredibly similar to ALS, and i read that some people had clean EMGs with ALS symptoms present. My neuromuscular specialist didn't even come up with a definitive diagnosis...
 

affected

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Congratulations that you have been cleared of ALS. I know it is hard as you don't have a diagnosis either, but hey no ALS is the best news!

This is an ALS forum, so we can't really help you here at all. We have to stay focused on ALS as our PALS are dying far too quickly and our CALS are exhausted looking after them.

All the best as you work towards finding out what is happening. Please read the sticky again and see that your situation doesn't fit ALS and that you have had your question answered so that you can move on for help elsewhere.
 
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