Lita31
Member
- Joined
- Dec 22, 2018
- Messages
- 10
- Reason
- Learn about ALS
- Country
- Uni
- State
- AZ
- City
- Buckeye
Please tell me if this sounds familar to any of you... I am a 31 year old mixed race female and 2 months ago I started to have trouble swallowing, then trouble breathing came next, soon all the muscles in my body hurt and felt very weak. The weakness and pain started with my neck, jaw and upper arms and is now all over. I also have occasional twitches in random muscles. As time has gone on there are now constant creaks and pops all over my body, like everywhere. Is this a sign of muscle breakdown?
And I have seen a Pulmonologist as well as an ENT to rule out other problems. Everything seems to be related to one issue and it isn't specifically my lungs, throat, or esophagus. I have been seeing a Neurologist, but he did some blood testing before my symptoms ramped up and didnt find any muscle loss. I am beginning to think he should do them again now that my symptoms are more intense.
The breathing issues seem ongoing. It feels like I can't take a full breath most of the time, but oxygen levels stay high enough.
Either way even my husband is noticing that I am so quiet at night when I sleep now that he is worried I'm not breathing.
I am so afraid and am not getting any answers. Could this be ALS?
And I have seen a Pulmonologist as well as an ENT to rule out other problems. Everything seems to be related to one issue and it isn't specifically my lungs, throat, or esophagus. I have been seeing a Neurologist, but he did some blood testing before my symptoms ramped up and didnt find any muscle loss. I am beginning to think he should do them again now that my symptoms are more intense.
The breathing issues seem ongoing. It feels like I can't take a full breath most of the time, but oxygen levels stay high enough.
Either way even my husband is noticing that I am so quiet at night when I sleep now that he is worried I'm not breathing.
I am so afraid and am not getting any answers. Could this be ALS?