Anxiousbetty
New member
- Joined
- Oct 23, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello, I frequent this forum mainly to read the “read before posting” post to help my anxiety. My symptoms started August 2021.
I began with twitching in my legs (I know anxious twitchers are all over this forum) and of course after googling I went into a world of panic. I went to my GP and all blood work was normal. I went to a neurologist and get like a complete waste of his time. He spent about 10 minutes on my exam and told me I am clear (thankfully) and agreed to send me to an EMG for peace of mind. The EMG offers by his office was $2,000, so my GP said a Physical Therapist in town specializes in EMG and nerve conduction tests for around $200. I decided to take that rout as my symptoms are worsening I feel.
-I continue to get fasciculations
-my hands and forearm has been tightening consistently (not a cramp but a very strong tighten)
-during the night my L quad has been waking me up feeling almost frozen. Like I cannot move it AT ALL. It is not numb, just like the muscle is not responding for a few minutes, then loosens again.
-my calves have been cramping nonstop.
Now I wouldn’t have posted if it was just the twitching, as I frequent BFS reddits as well. I ran into a scary story about cramping and spasticity and it really threw me back to where I was in August.
The PT told me my EMG on my R leg and R arm looked fine and I should put this to rest, but now my anxious mind is making me second guess because he isn’t a “neurologist”.
I’m aware this isn’t the typical onset scenario, but the story about cramping and spasms brought me back here- to post for the first time.
Of it were ALS the EMG would have showed it, correct?
I would like to add I am 26 F and the fasciculations are body wide and 24/7. The spasms and cramps are mainly in my calves.
I began with twitching in my legs (I know anxious twitchers are all over this forum) and of course after googling I went into a world of panic. I went to my GP and all blood work was normal. I went to a neurologist and get like a complete waste of his time. He spent about 10 minutes on my exam and told me I am clear (thankfully) and agreed to send me to an EMG for peace of mind. The EMG offers by his office was $2,000, so my GP said a Physical Therapist in town specializes in EMG and nerve conduction tests for around $200. I decided to take that rout as my symptoms are worsening I feel.
-I continue to get fasciculations
-my hands and forearm has been tightening consistently (not a cramp but a very strong tighten)
-during the night my L quad has been waking me up feeling almost frozen. Like I cannot move it AT ALL. It is not numb, just like the muscle is not responding for a few minutes, then loosens again.
-my calves have been cramping nonstop.
Now I wouldn’t have posted if it was just the twitching, as I frequent BFS reddits as well. I ran into a scary story about cramping and spasticity and it really threw me back to where I was in August.
The PT told me my EMG on my R leg and R arm looked fine and I should put this to rest, but now my anxious mind is making me second guess because he isn’t a “neurologist”.
I’m aware this isn’t the typical onset scenario, but the story about cramping and spasms brought me back here- to post for the first time.
Of it were ALS the EMG would have showed it, correct?
I would like to add I am 26 F and the fasciculations are body wide and 24/7. The spasms and cramps are mainly in my calves.