faithandlove
Distinguished member
- Joined
- May 22, 2016
- Messages
- 174
- Reason
- PALS
- Diagnosis
- 06/2016
- Country
- US
- State
- NV
- City
- Reno
I wrote this a few days after I was diagnosed. I used to write poetry when I got upset, but gave it up years ago. It may be corny, but it's the best way to describe how I feel.
I used to walk, in fact I ran
I got things done
I always said, "I can!"
I can, I can, I can
I worked full-time and went to school
All the while I raised my children
And felt there was nothing I could not do
I can, I can, I can
"Super Mom" was my nickname
I loved to sew, cook and clean
I was happy and never did seek out fame
I can, I can, I can
Then one day I started to limp
I felt pain in my legs
I found I would slip
I can, I can, I can
Stress and a pinched nerve doctors diagnosed me
But I continued to get worse and when I nearly fell into our pond,
I said enough is enough I needed to know what was wrong
I can, I can, I can
Then when I could hardly walk and my right hand was weak
I saw a doctor who did not make me feel like a freak
I can, I can, I can
He sent me to UCSF Medical Center three hours away
After two visits, MRI's, EMG's and blood tests
I was taken seriously and that made my day
I can, I can, I can
ALS or Lou Gehrig's disease was what I was told
A punch in my stomach
No one could console
I can, I can, I can
This poem is incomplete and it will be sad
But my journey with this illness has just begun
And I have a lot I must add
I can, I can, I can until I cannot
I used to walk, in fact I ran
I got things done
I always said, "I can!"
I can, I can, I can
I worked full-time and went to school
All the while I raised my children
And felt there was nothing I could not do
I can, I can, I can
"Super Mom" was my nickname
I loved to sew, cook and clean
I was happy and never did seek out fame
I can, I can, I can
Then one day I started to limp
I felt pain in my legs
I found I would slip
I can, I can, I can
Stress and a pinched nerve doctors diagnosed me
But I continued to get worse and when I nearly fell into our pond,
I said enough is enough I needed to know what was wrong
I can, I can, I can
Then when I could hardly walk and my right hand was weak
I saw a doctor who did not make me feel like a freak
I can, I can, I can
He sent me to UCSF Medical Center three hours away
After two visits, MRI's, EMG's and blood tests
I was taken seriously and that made my day
I can, I can, I can
ALS or Lou Gehrig's disease was what I was told
A punch in my stomach
No one could console
I can, I can, I can
This poem is incomplete and it will be sad
But my journey with this illness has just begun
And I have a lot I must add
I can, I can, I can until I cannot