inshallah
New member
- Joined
- Dec 25, 2017
- Messages
- 2
- Reason
- Learn about ALS
- Country
- Swe
- State
- -
- City
- Stockholm
Hi everyone
Try to make long story somewhat short.
It started after 10 day long flue-like symptoms in aug. Followed by left-sided chest pain and then breathlessness at exertion. Pain subsided and my breathing issues has stablized somewhat. I have to sleep with inclined bed to not wake up of breathlessness. I have done very extensive work ups nothing has been found yet.
In Okt/nov I noticed strong repeating twitching of my right little finger. I shortly if I remember correctly started having twitches everywhere. Nothing that bothered me and the twitches where short and subtle in the rest of my body unlike how it was with my right little finger.
At the end of november I started to have very strong twitches everywhere. My limbs, abdomen, back. Now a months later I have noticed of what I am almost certain of atrophy in both my deltoid muscles, left neck, hands and feets. More to the left then to the right but it seems somewhat symmetrical. Strangely I haven't felt or experienced any significant weakness or loss of function, although my joints feel instable where there is atrophy and my strength is somewhat limited by instability pain in this areas. I also had twitches in my chin/cheeks and tounge.
I have not very clear sign of upper motor neuron engagement. I have been hyperreflexive for long time, but I dont recall them being this brisk. I have positive hoffman both sides, negative babinski on right and unresponsive babinski on left. No spasticity.
After following extensive research I have come to believe that I have some sort of motor neuron disease and my highest suspicion being ALS. The last couple of weeks been horrible as I've tried to come to terms with this
To my understanding respiratory onset ALS is rare and being 23 year old male it becomes remarkably rare. This fact has not calmed my senses tho.
I have an appointment with neurologist in the comings months. I just wanted to ask if you guys know a initial presentation of symptoms like this of ALS.
Does it happen that you experience twitches and thereafter atrophy and last weakness? I seem to experience the reverse order?
I also have since the start of this felt fatigue and sickness like feeling that I have been attributing to my breathing issues? Is it common that PALS experience sickness like feeling and fatigue in the begining?
Thanks for your answers!
Take care <3
Try to make long story somewhat short.
It started after 10 day long flue-like symptoms in aug. Followed by left-sided chest pain and then breathlessness at exertion. Pain subsided and my breathing issues has stablized somewhat. I have to sleep with inclined bed to not wake up of breathlessness. I have done very extensive work ups nothing has been found yet.
In Okt/nov I noticed strong repeating twitching of my right little finger. I shortly if I remember correctly started having twitches everywhere. Nothing that bothered me and the twitches where short and subtle in the rest of my body unlike how it was with my right little finger.
At the end of november I started to have very strong twitches everywhere. My limbs, abdomen, back. Now a months later I have noticed of what I am almost certain of atrophy in both my deltoid muscles, left neck, hands and feets. More to the left then to the right but it seems somewhat symmetrical. Strangely I haven't felt or experienced any significant weakness or loss of function, although my joints feel instable where there is atrophy and my strength is somewhat limited by instability pain in this areas. I also had twitches in my chin/cheeks and tounge.
I have not very clear sign of upper motor neuron engagement. I have been hyperreflexive for long time, but I dont recall them being this brisk. I have positive hoffman both sides, negative babinski on right and unresponsive babinski on left. No spasticity.
After following extensive research I have come to believe that I have some sort of motor neuron disease and my highest suspicion being ALS. The last couple of weeks been horrible as I've tried to come to terms with this
To my understanding respiratory onset ALS is rare and being 23 year old male it becomes remarkably rare. This fact has not calmed my senses tho.
I have an appointment with neurologist in the comings months. I just wanted to ask if you guys know a initial presentation of symptoms like this of ALS.
Does it happen that you experience twitches and thereafter atrophy and last weakness? I seem to experience the reverse order?
I also have since the start of this felt fatigue and sickness like feeling that I have been attributing to my breathing issues? Is it common that PALS experience sickness like feeling and fatigue in the begining?
Thanks for your answers!
Take care <3
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