trimgem35
New member
- Joined
- Feb 6, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- NS
- City
- Sydney
June 2020- Daily twitching of left eye (which continues).
October 2020- Pins and needles and numbness in left foot (sometimes in right). Bad right-sided headache. Two random bouts of vertigo (saw white lights).
November 2020- Daily twitches throughout body, especially in feet and legs when laying down. Choking sensation in throat area (i.e. feels very tight often). Body feels weird. Have had burning sensation and pain in limbs for no apparent reason. When I lay down at night, legs feel weird and different (aching feeling in legs).
Neurological workup. Nerve conduction study of upper and lower limbs (normal). MRI of Spine (normal). MRI of Brain (minimal non-specific gliotic foci within supranational white matter not typical of demyelination. No MRI evidence of established demyelination process. Neurologist said based on MRI report, I do not have MS. Neurologist concluded after physical examination that I had no signs for ALS.
I believe my symptoms all match ALS. Neurologist refuses to give me an EMG (said there is no foundation to give the tests and does not want to take my money). My right back of leg feels tight often.
I am scared I am dying (certainly feels that way).
Appreciate your thoughts / analysis.
October 2020- Pins and needles and numbness in left foot (sometimes in right). Bad right-sided headache. Two random bouts of vertigo (saw white lights).
November 2020- Daily twitches throughout body, especially in feet and legs when laying down. Choking sensation in throat area (i.e. feels very tight often). Body feels weird. Have had burning sensation and pain in limbs for no apparent reason. When I lay down at night, legs feel weird and different (aching feeling in legs).
Neurological workup. Nerve conduction study of upper and lower limbs (normal). MRI of Spine (normal). MRI of Brain (minimal non-specific gliotic foci within supranational white matter not typical of demyelination. No MRI evidence of established demyelination process. Neurologist said based on MRI report, I do not have MS. Neurologist concluded after physical examination that I had no signs for ALS.
I believe my symptoms all match ALS. Neurologist refuses to give me an EMG (said there is no foundation to give the tests and does not want to take my money). My right back of leg feels tight often.
I am scared I am dying (certainly feels that way).
Appreciate your thoughts / analysis.