i am scared

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dona jean

Active member
Joined
Nov 21, 2007
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39
Reason
PALS
Diagnosis
10/2007
Country
US
State
virginia
City
virginia beach
you all have probably heard this time and time again....but i am scared.
the more i read about what my future will be like the more i don't want to know!
i don't know where to start to prepair myself and my family for what is to come down the road. any and all advice will be greatfully appreciated.
thanks.
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Research, research, research! Find out about every resource, every adaptive aid, every therapy and clinical trial. Information is power and can give reassurance that you can manage this disease instead of it managing you.

When I first came here just after I was diagnosed, I spent hours reading old threads. I learned terms and found out about adaptive aids and equipment I never even knew existed. Knowing this information enabled me to visualize how I was going to live with ALS so I have been able to make plans for the future accordingly.

Hang in there,

Liz
 

Peg B

Distinguished member
Joined
Nov 5, 2006
Messages
414
Reason
PALS
Diagnosis
10/2006
Country
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State
Michigan
City
Flint
Dear Liz,

Great information, great attitude. Thanks for the inspiration. Sincerely, Peg
 

dona jean

Active member
Joined
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Messages
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Reason
PALS
Diagnosis
10/2007
Country
US
State
virginia
City
virginia beach

vmd

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Liz:

Thank you for the information. Is there one document that you can identify that brings all the information together the ALS sufferer needs, including disability information, equipment, etc?
 

dona jean

Active member
Joined
Nov 21, 2007
Messages
39
Reason
PALS
Diagnosis
10/2007
Country
US
State
virginia
City
virginia beach
thanks for that link Al, i found it very informative.
dona
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
No problem. Always glad to share information.
AL.
 
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