Well…3rd diagnosis after a 2nd EMG. MGH thinks it was caught fairly early so eligibility for clinical trials are good. Breathing is 100% normal. Time to focus on Mood, Food and sleep. My support network is closing ranks which is amazing to feel.
Already I feel the ever present frustration of the weakness setting in. It’s like a Lin annoying buzz that doesn’t go away. As a life long athlete accepting this fate will be the hardest challenge ever.