- Oct 2, 2008
- New York
My wife has ALS and Frontal Temporal Dementia. Diagnosed with FTD about 15 months ago. ALS diagnosed 6 months ago.She has lost speech and is having a difficult time swallowing. Now finding it hard to get up from a chair and out of bed. Doctors say a decision on feeding tubes must be made wihin 3 to 12 months. Neurologist, General Practioner, ALS specialist and our experienceed aide all recommend against its' use for her because of the combination of the two illnesses and the rapid deterioration she is expiriencing. She is also becoming agressive and nolonger can type or handle her normal chores of bookkeeping etc. The feeling is that the feeding tube in her situation would be almost cruel. ANY COMMENTS or THOUGHTS?