When a doctor says virus He has no clue what it is And a virus is a catch all.You need to see someone else Patmyooshka said:I was told doctor's say maybe a virus when they have no clue, cause that's what was getting told to me in beginning. Like my Dr. said if this is supposed to be a virus than what kind of virus is it?
vantec said:Hi Cindy and all my friends,
I've seen 3 Neurologists, 11 doctors in all, had all the blood work imaginable, a brain MRI, 4 EMGs, Cat-Scan and now they want to do an ultrasound. The reason I have not posted is I am in the most teribble pain, and even Percocet won't help. I am so weak that I can barely stand up now, my legs are so stiff, my back and arms are so weak, and my fingers are now starting to curl. I've lost over 50 pounds since this has all started over 1 year ago. Everyday is worse than the last, and I can't take it anymore. If I don't have ALS, I sure don't know what it can be, and neither do the doctors. I feel like the unluckiest person in the world.
One question for people with ALS. Do you feel hot all the time?
myooshka said:I was told doctor's say maybe a virus when they have no clue, cause that's what was getting told to me in beginning. Like my Dr. said if this is supposed to be a virus than what kind of virus is it?
patricia1 said:My husband always says that alot of heat is coming off my body when I go near him in bed and if I sleep near him we wake up wet from sweat.I never had that before ALS I used to be cold all the time. I wonder what that is .
Conrad I think 25 breaths a min is almost like panting I would see a Lung Md .That sould be at 9 breaths a min,Thanks concerning. Take Care Patvantec said:Hi Pat,
Thanks for caring. As for what they say I have, they don't know yet. But my breathing capacity was measured, and it was below normal. I feel like I can't take a full breath, and take about 25 breaths a min., but I am not hyperventilating. They also measured nerve degeneration in my thigh muscle, but didn't make much of it.
Yes, I've seen a Neurologist at the Cleveland Clinic, which is rated 4th in the county for Neurology. But I was tested over 5 months ago, and things could have changed by now. They won't see me for 3 months, and will do nothing about my pain. I'm as mad as a wet hen, when these doctors won't do anything for you. Thanks for praying for me, heaven knows I pray 10 times a day.