Just when I think I got these fears under somewhat control something happens. Just a recap some 32 monts ao I developed a twitch on the front right side tip of my tongue. It would come and go. I could even make it do it. I went to both my doctor and the Neuro. They did all fo the test including an EMG of my tongue ( this was done about 25 months ago) and it came back normal. I saw my Neuro for over 2 years and he finally said to come back when my wife says so. No one could tell me why my tongue twitched. They all said it was not due to ALS. In November of 2009 my wife and I both got the Flu after getting our flu shots. I went to bed with a Halls cough drop in my mouth. I woke up the morning with it still in my mouth. The top of the right side of my tongue was twitching. It was actually pulling the right side of my tongue back. Needles to say this freaked me out. I called the doctor and he saw me right away. Unfortunately by the time I got there that afternoon the twitching had stopped. He said Tom your tongue looks perfectly healthy and not to worry. Every once in a while my tongue would still do this but I learn to lie with it. In February of this year I had a follow up with my ENT who examined my tongue. These where his exact words your tongue is healthy and there is no signs of muscle wasting. My GP saw me this past Monday to follou up with me because I am on 1mg of Valium three times a day. He said it would help me relax and reduce any muscle spasm. He looked at my tongue and said it was fine.
Tuesday afternoon I started getting these sharp pains in my tongue. I looked in the mirror and could see the twitch on the top of the right side of my tongue and it was pulling te front of my tongue back. These twitches came back when I was eating or even speaking and sometimes not doing any thing. I still had them on Wednesday so I called the Neuro who saw me Thursday Morning. This time he saw the twitches. They ranged from the big ones to the little ones in that spot. They are not constant. I can make my tongue to di. He had me open my mouth for about 3 minutes with my tongue resting and said that it was quite. He said this was not an ALS type twitch. I said to him sometime I can feel it and some times not. I also menteined that I notice at the times the bottom portion of the groove in the middle of my tongue was closed sometimes when I stick my tongue out ( like the two sides are stuck together) He said Tom your tongue looks healthy and he gave me Cymalta to take to calm me down and said to cOme back in 4 weeks. He told me that if it was ALS after 32 months I would not be speaking and more than likely on a ventilator.
Has anyone here had any of these symptoms? I am so sorry to bother you all. I have ner been such a baby in my life. These Tongue twitches and thoughts of ALS have just stricken a fear in me that I cannot shake. In fact just right now I got one of those big twitches and now it is calm for how long I don't know.
Tuesday afternoon I started getting these sharp pains in my tongue. I looked in the mirror and could see the twitch on the top of the right side of my tongue and it was pulling te front of my tongue back. These twitches came back when I was eating or even speaking and sometimes not doing any thing. I still had them on Wednesday so I called the Neuro who saw me Thursday Morning. This time he saw the twitches. They ranged from the big ones to the little ones in that spot. They are not constant. I can make my tongue to di. He had me open my mouth for about 3 minutes with my tongue resting and said that it was quite. He said this was not an ALS type twitch. I said to him sometime I can feel it and some times not. I also menteined that I notice at the times the bottom portion of the groove in the middle of my tongue was closed sometimes when I stick my tongue out ( like the two sides are stuck together) He said Tom your tongue looks healthy and he gave me Cymalta to take to calm me down and said to cOme back in 4 weeks. He told me that if it was ALS after 32 months I would not be speaking and more than likely on a ventilator.
Has anyone here had any of these symptoms? I am so sorry to bother you all. I have ner been such a baby in my life. These Tongue twitches and thoughts of ALS have just stricken a fear in me that I cannot shake. In fact just right now I got one of those big twitches and now it is calm for how long I don't know.