I AM ALS - Check it out!

Thomas933

Active member
Joined
Dec 4, 2018
Messages
90
Reason
CALS
Diagnosis
12/2018
Country
Uni
State
RI
I AM ALS is a a patient-led, patient centric community that reshapes public understanding of this disease, provides key resources to the community, and creates opportunities for patients to lead the fight against ALS and search for a cure.They are building a movement to cure ALS. Check out the new FAQ page that was created by people fighting ALS. It's an amazing resource that is focused on treatment and cures.
 

Thomas933

Active member
Joined
Dec 4, 2018
Messages
90
Reason
CALS
Diagnosis
12/2018
Country
Uni
State
RI
There is now officially a bi-partisian ALS Caucus in the US House of Representatives. The 4 Co-Chairs are Rep. Fitzpatrick from PA, Rep. Crow from CO, Rep. Sewell from LA and Rep.Calvert from CA. I AM ALS is working to get members of the House to become members of the ALS Caucus to join so that we can get more $$$ for research and treatments and policy changes to get treatments and cures to pALS faster. If you are interested in learning more, reach out to the I AM ALS Legislative Affairs Subcommittee. We can win this fight if we fight together.
 
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