Cjgroe
New member
- Joined
- Feb 16, 2023
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
I am M, 54, and have been to the neurologist multiple times and have an abnormal Nerve conduction study in my legs, and one negative (normal in arms). I have really bad calf twitching for over a year that has gotten quite painful and cramping the past few months. The doctor tells me "I don't think it is ALS" (not confidently IMHO) which is not too reassuring. Brain MRI is normal. Cervical MRI no lesions but massive herniation at C3-C4 that is pressing on cord but normal signal. Also severe stenosis in this disk. Lumbar has L3-L4 issues which I had surgery in December, but while fixing back, did nothing for leg issues. L5-S1 on MRI has no herniation, and only mild stenosis. Arthritis and stenosis throughout lumbar and cervical spine, but probably expected at my age. Legs are twitching progressively worse by the month, and I am getting worries as to why? I haven't seemed to lose any strength yet which I take as a positive, but I am starting to feel a bit unsteady at times. (getting out of bed in morning, Walking up stairs)
NCS and EMG below, but I don't fully understand them to be honest. I am trying to get second opinion from another Neurologist , but can't find an appointment before July. As a final piece of information, I am diabetic for 25 years (type 2 and only on pills) and A1c is very well controlled between 5.8 and 6.5 at all 6 month testing intervals.
I appreciate any help or reassurance in advance as I am getting a bit worried now with legs continually twitching worse. Thank you for your time and listening.
NCS and EMG below, but I don't fully understand them to be honest. I am trying to get second opinion from another Neurologist , but can't find an appointment before July. As a final piece of information, I am diabetic for 25 years (type 2 and only on pills) and A1c is very well controlled between 5.8 and 6.5 at all 6 month testing intervals.
I appreciate any help or reassurance in advance as I am getting a bit worried now with legs continually twitching worse. Thank you for your time and listening.