Meggers
New member
- Joined
- Dec 23, 2008
- Messages
- 6
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- US
- State
- CA
- City
- Lake Forest
Ok here is my story,
11/12/2008 I was diagnosed with ALS. I am 25 years old as of two weeks ago. My father died when I was 6 at the age of 35. He was diagnosed and gone within 6 months. I vividly remember what this disease did to him and I am in no way looking forward to it. 7 years later in 1998, my uncle passed away at 50 something. In 2003 , my other uncle passed away. Both cases were diagnosed and they had passed in under a year. So I a bit stressed that I too will progress as quickly as my family. My grandfather, great aunt, and great grandmother also died from ALS.
I am ready to do whatever I can. Not to survive, but prolong mylife. There are still things I want to experience and I am determined to do them. I can't move from the knee down and have weakness and atrophy in my thigh and gleut, all on my left leg. I twitch all over, which is annoying. I am on Rilutek and might start taking lithium.
So if there is anyone out there who has lived with this for a long period, let me know. Also if there is anyone my age.
Thanks so much,
Megan :shock:
11/12/2008 I was diagnosed with ALS. I am 25 years old as of two weeks ago. My father died when I was 6 at the age of 35. He was diagnosed and gone within 6 months. I vividly remember what this disease did to him and I am in no way looking forward to it. 7 years later in 1998, my uncle passed away at 50 something. In 2003 , my other uncle passed away. Both cases were diagnosed and they had passed in under a year. So I a bit stressed that I too will progress as quickly as my family. My grandfather, great aunt, and great grandmother also died from ALS.
I am ready to do whatever I can. Not to survive, but prolong mylife. There are still things I want to experience and I am determined to do them. I can't move from the knee down and have weakness and atrophy in my thigh and gleut, all on my left leg. I twitch all over, which is annoying. I am on Rilutek and might start taking lithium.
So if there is anyone out there who has lived with this for a long period, let me know. Also if there is anyone my age.
Thanks so much,
Megan :shock: