hyperparathyroid and ALS

[Txgirl]

In April my PTH (parathyroid) level was elevated at 88. This month it is even higher at 94. The normal range is 15 to 65.
I am wondering if elevated PTH levels are consistent with ALS. Has anyone else experienced high parathyroid hormone levels?

 

[Ms. Pie]

Not I nor anyone with ALS i know that they've mentioned. Did you ask your Neurologist about it

 

[mich5]

Perhaps as well as asking your neurologist, you should contact an endocrinologist. I had some thyroid trouble just prior to my ALS diagnosis and my endocrinologist and neurologist worked together to resolve the issues. My thyroid issues were not related to ALS.

 

[Txgirl]

When he went over my blood work with me in April he mentioned that my PTH was elevated. He didn't seem real concerned.
Can now check my lab work online in the patient portal. I have not spoken to my neuro since receiving the latest results.
I will contact my GP to refer me to an endocrinologist.

 

[Txgirl]

I have being doing research all evening re: Hyperparathyroidism and found numerous studies that state Hyperparathyroid can mimic ALS/MND. I also have low vitamin D levels. Maybe I just haven't fully accepted my diagnosis and am still grasping for anything else. I keep thinking, I'm only 43 yrs old how can I have ALS? It has to be a mistake. Then I think but I have one of the best ALS specialists in the country...he doesn't make mistakes. Then I think BUT he is human.
I'm just having a crazy day!:shock:

 

[mich5]

The endocrinologist should be able to help with your questions and treatment. Make sure you take copies of your lab work with you. You could always send an email to your ALS doc with a link to the Internet page on which you're finding the parathyroid info. They could then comment on it.

 

[Uptown]

Thyroid and parathyroid issues can present as neuromuscular disorders with cramping, spasticity and fasiculations as muscles are starved. High calcium levels with high PTH levels often indicate a tumor in the parathyroids although usually benign. Bulbar palsy is believed to contribute to pituatary/hypothalamus issues which can include almost any hormone loop in a random manner.

 

[Txgirl]

The endocrinologist should be able to help with your questions and treatment. Make sure you take copies of your lab work with you. You could always send an email to your ALS doc with a link to the Internet page on which you're finding the parathyroid info. They could then comment on it.

I plan on taking copies of my lab work. There are many sites with info about parathyriod causing ALS symptoms, not just one. Thanks for the tips.

 

[Txgirl]

Thyroid and parathyroid issues can present as neuromuscular disorders with cramping, spasticity and fasiculations as muscles are starved. High calcium levels with high PTH levels often indicate a tumor in the parathyroids although usually benign. Bulbar palsy is believed to contribute to pituatary/hypothalamus issues which can include almost any hormone loop in a random manner.

I have elevated calcium levels, elevated PTH and low vitamin D.
What I haven't been able to find is nerve damage related to parathyroidism. More than likely I have a parathyroid tumor AND ALS! I will make arrangements tomorrow to see an endocrinologist. Thanks for posting the info.

 

[TerryG]

Numerous cases of Primary Hyperparathyroidism and Secondary Hyperparathyroidism in combination with ALS
over the years. You will find others who have come and gone on this site in this category. I don’t know if I would
say that it mimics ALS but saying that, there have been reported cases which did resolve ALS like systems after
adenoma removal and many that did not.

 

[Danielson]

Txgirl...I have some information about Parathyroid and ALS symptoms. I will message you. It may or may not be related to the issues you are having.