Njohn
New member
- Joined
- Jan 16, 2023
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 01/2022
- Country
- US
- State
- NV
- City
- Las Vegas
Hello all. First off, reading many of these posts have brought me to tears and I just wanted to say how much I admire the bravery and positivity that you all share.
My husband, the love of my life, is 40 years old. About 6 years ago, his left foot started cramping up when he would be sitting or lying down. He would walk it off but then started noticing at the gym that he couldn’t run anymore. He has walked with a limp since that and it has affected his hip due to the over-compensation of putting more weight on one side. His left leg is very skinny due to the atrophy. In the past six years, it has slowly progressed. His right foot is starting to show signs of foot drop. He twitches in his biceps. We have been to the Mayo Clinic several times and he has had many EMGs, MRIs, etc. His recent results showed there’s some “activity” and muscle deterioration in his abdomen. We don’t know where to begin. What to think. We are so, so scared. I’m so angry. I don’t know where to turn or who to even talk to. I have so many questions. Are medications worth it? Which ones? Has anyone else experienced this slow progression and what should he expect? Any supplement or exercise recommendations? We haven’t even had the chance to have a family … I just want to support him in the best way I can. Please, if there’s any advice, suggestions, ideas, anything, I would greatly appreciate it. I hope and wish for the best for everyone on here and their loved ones.
My husband, the love of my life, is 40 years old. About 6 years ago, his left foot started cramping up when he would be sitting or lying down. He would walk it off but then started noticing at the gym that he couldn’t run anymore. He has walked with a limp since that and it has affected his hip due to the over-compensation of putting more weight on one side. His left leg is very skinny due to the atrophy. In the past six years, it has slowly progressed. His right foot is starting to show signs of foot drop. He twitches in his biceps. We have been to the Mayo Clinic several times and he has had many EMGs, MRIs, etc. His recent results showed there’s some “activity” and muscle deterioration in his abdomen. We don’t know where to begin. What to think. We are so, so scared. I’m so angry. I don’t know where to turn or who to even talk to. I have so many questions. Are medications worth it? Which ones? Has anyone else experienced this slow progression and what should he expect? Any supplement or exercise recommendations? We haven’t even had the chance to have a family … I just want to support him in the best way I can. Please, if there’s any advice, suggestions, ideas, anything, I would greatly appreciate it. I hope and wish for the best for everyone on here and their loved ones.