Sophia51
New member
- Joined
- Jun 15, 2019
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 05/2019
- Country
- UK
- State
- NY
- City
- London
My husband has rapidly progressing bulbar onset ALS. He should really be using his NIV now as he has trouble breathing at rest. His current ALS FRS R score is 7. He gets panic attacks when he uses it ,despite lorazepam.The max he can stand to do is an hour a day. What can we expect in the next few weeks, if he continues to refuse? Many thanks, S