First of all, let me say how wonderful I think this site is, it gives me inspiration and information that is helping to get us through this horrible journey as I read all the wonderful member's posts and supportive comments. I am so appreciative of this.
Currently we are awaiting diagnosed of MND of some type (ALS suspected) for my husband. He has been "suggested" but not diagnosed with fibromyalgia but his sx are worsening and he's losing muscle mass and motor function every day. It's been 3 years now and we are hoping to get some answers but also hoping it's not ALS.
For the last 4 months he's been experiencing high levels of pain in his back (he says it feels like his kidneys hurt) and his back has huge knots in it that are raised like large humps along the sides of his spine. Some nights he's awake all night b/c of this pain, regardless of the many pain killers he's on. Aside from this, he has now starting experiencing the same level of pain in his hips, he cannot get comfort to tolerate it in any position. He is tripping more consistently although he uses a cane (not sure if this is related). He has experienced spasms/cramps consistently for quite some time as well.
Could these knots me related to muscle wasting? Is there anything I can do to help ease the pain? He uses heat packs, pain meds (Naproxen, Tramacet, Lyrica, sometimes slow release morphine), and tries to stretch each day to no avail. It's so hard to see him in so much pain and fading away and not be able to help.
I would appreciate any advice you can offer. Thank you again for being here, you are all an inspiration to many, including myself. Stay strong.
Currently we are awaiting diagnosed of MND of some type (ALS suspected) for my husband. He has been "suggested" but not diagnosed with fibromyalgia but his sx are worsening and he's losing muscle mass and motor function every day. It's been 3 years now and we are hoping to get some answers but also hoping it's not ALS.
For the last 4 months he's been experiencing high levels of pain in his back (he says it feels like his kidneys hurt) and his back has huge knots in it that are raised like large humps along the sides of his spine. Some nights he's awake all night b/c of this pain, regardless of the many pain killers he's on. Aside from this, he has now starting experiencing the same level of pain in his hips, he cannot get comfort to tolerate it in any position. He is tripping more consistently although he uses a cane (not sure if this is related). He has experienced spasms/cramps consistently for quite some time as well.
Could these knots me related to muscle wasting? Is there anything I can do to help ease the pain? He uses heat packs, pain meds (Naproxen, Tramacet, Lyrica, sometimes slow release morphine), and tries to stretch each day to no avail. It's so hard to see him in so much pain and fading away and not be able to help.
I would appreciate any advice you can offer. Thank you again for being here, you are all an inspiration to many, including myself. Stay strong.
