smokey
New member
- Joined
- Oct 30, 2007
- Messages
- 4
- Reason
- CALS
- Country
- au
- State
- buckland
- City
- buckland
Hi my husband is waiting to be tested for MND. This has been really hard as he has had symptoms for nearly a year and not told me. he finally told me he had an appointment with a neurologist and was not having an affair. he had been so distant and pushed me away wouldnt tell me what was wrong until finally I asked him if he wanted me to leave thats when he told me. He still wont tell me the date of his test says he wants to deal with it first then will tell me when he is ready.This is so hard as I want to be there for him.He keeps saying even if the test is positive doesnt mean he has it. He symptoms have got worse. What started as just cramp in his calves have now gone to twitching in thighs , back and arms. He has some weakness in his grip but that comes and goes. He has lost 12kg over the year, but also not exercising as has a broken pelvis at the moment from Mountaining biking he is very active so quite depressed about everything.
What can I do to help him and get him to open up I am scared he will try to handle it himself. He said he didnt want to tell me as he doesnt want me to worry. We have been together for 20yrs he is only 43.I feel guilty when I get angry with him for being a pain knowing what he is going through. I told him no matter what we will deal with it together.That we just have to take one day at a time.He seems to be happier with people that dont know thats hard to take but I understand why. What can I do ?
Have no new new. Did ask again when appointmnet is. I know it is sometime this month. I hate this waiting so I cant imagine what it is like for him.
What can I do to help him and get him to open up I am scared he will try to handle it himself. He said he didnt want to tell me as he doesnt want me to worry. We have been together for 20yrs he is only 43.I feel guilty when I get angry with him for being a pain knowing what he is going through. I told him no matter what we will deal with it together.That we just have to take one day at a time.He seems to be happier with people that dont know thats hard to take but I understand why. What can I do ?
Have no new new. Did ask again when appointmnet is. I know it is sometime this month. I hate this waiting so I cant imagine what it is like for him.