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smokey

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CALS
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au
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buckland
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buckland
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Hi my husband is waiting to be tested for MND. This has been really hard as he has had symptoms for nearly a year and not told me. he finally told me he had an appointment with a neurologist and was not having an affair. he had been so distant and pushed me away wouldnt tell me what was wrong until finally I asked him if he wanted me to leave thats when he told me. He still wont tell me the date of his test says he wants to deal with it first then will tell me when he is ready.This is so hard as I want to be there for him.He keeps saying even if the test is positive doesnt mean he has it. He symptoms have got worse. What started as just cramp in his calves have now gone to twitching in thighs , back and arms. He has some weakness in his grip but that comes and goes. He has lost 12kg over the year, but also not exercising as has a broken pelvis at the moment from Mountaining biking he is very active so quite depressed about everything.
What can I do to help him and get him to open up I am scared he will try to handle it himself. He said he didnt want to tell me as he doesnt want me to worry. We have been together for 20yrs he is only 43.I feel guilty when I get angry with him for being a pain knowing what he is going through. I told him no matter what we will deal with it together.That we just have to take one day at a time.He seems to be happier with people that dont know thats hard to take but I understand why. What can I do ?

Have no new new. Did ask again when appointmnet is. I know it is sometime this month. I hate this waiting so I cant imagine what it is like for him.
 
tnuliz,

Nezci zua tjuamf vimm jon xjev zua katv vumf at [RAUVI]O jevi vjot xeovoph tu O depv onehopi xjev ov ot moli gus jon.
[/RAUVI]

og zua jewip'v emsiefz. Nezci ji xuamf siemobi zua vxu esi "upi" egvis 23 ziest epf zua edji op zuas tuam gus jon...
 
O jewi vumf jon emm vjot cav jot eptxis ot emxezt " O xomm fiem xovj ov gostv, vjip xomm miv zua lpux" ji tez ji jet vu tusv vjopht uav op jot uxp nopf cigusi mivvoph epzupi imti fiem xovj ov. Ov katv tiint vu ni vjev vjisi ot vjot heq gusnoph civxiip at epf O en puv tasi jux vu dmuti ov. Emm O dep fu ev vji nupipv ot xeov epf ci vjisi epf katv juqi ji vaspt vu ni xjip ji piift ni epf puv vsz vu fu vjopht jontimg.
 
Jo Tnuliz,

Fup'v fotqesi. Iwiszupi fiemt xovj vjot pixt op e foggisipv xez. O fiemv xovj ov katv moli zuas jatcepf. O pux duptofis ov upi ug vji notvelit O nefi emuph vji qevj, cav O juqi zua xomm ci siettasif vu lpux vjev piesmz 10 ziest mevis, xi jewi e tvsuphis cupf vjep nutv duaqmit O lpux. Vji hsoiwoph qsuditt nez veli e xjomi, cav og zua sineop eweomecmi gus jon, djepdit esi, vjot iyqisoipdi xomm upmz neli zua dmutis. :)

Noli
 
Tuni gumlt ati vji gedv ug cioph omm et e xez vu hsux, O haitt. howit vji sitv ug at tunivjoph vu xusl vuxesft. Dopfz
 
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