- May 5, 2008
- Corpus Christi
My name is Kimberly I'm 39 and my husband is 42. We live in Corpus Christi, Texas with our three children (Justin 19, Amanda 14 & James 9). We have been together since I was 14yrs old, will be married 21yrs this November. I've been ferverently combing the website and reading post after post looking for anything I can get: support, answers, hints etc. I'm so totally devasted by this news. My husband was diagnosed by a neuro doc 4-23-08(so this is al new to us). He said it was sporadic ALS. We don't know anymore specifics (as to whether its fast/slow progressing-which I learned from reading this site). He has lost 75% use of his left arm in 2months, fasciculations roaming to shoulders, right arm and legs now. It seemed to increase after we started Rilutek and Lithium. We go to San Antonio soon (I hope-they're still coordinating appointments) to see an ALS specialist and more testing. So I guess we aren't officially diagnosed til then? I have so much more to write but have to go to work (RN with pediatrics).