My 54 year old husband started at an ALS clinic in 2005 because of fasciculations and slight weakness. After a few visits and tests he felt he did not belong there. Had a late diagnosis of polio when he was about 12, probably 7 years after he had supposedly had the disease. Therefore he began going to both a local neuro and a post polio clinic. Meanwhile, his fasciculations are popping everywhere, notice some muscle wasting, and his muscle weakness is so bad he hardly walks anymore! Uses a cane for a few steps, and has 2 AFO's. Post polio doctor said his symptoms do not look like his typical PPS patients, so he sent him back to the ALS clinic. He recently had much blood work, which we do not know the results of, and this Monday he goes for a spinal tap. His EMG, done by local neuro showed it was up fro 1+ to 2+ (whatever that means), also chronic denervation shown from polio. ALS doctor said things may not show up on the EMG because of the polio, but she is doing a repeat one. He says he is weaker every day and does not think he will be walking much longer. He is very depressed. He is convinced he has ALS, while I tell him it could be so many other things. Extremely hard on him waiting for tests, answers, etc. Also, to add this to the mix he was on Lipitor from about Nov. '06 to May '07. If anyone has some thoughts to share, that would be great.
Thanks and god bless.
Thanks and god bless.