Hi,
Any of you who read my post on "Do I have ALS" know my husband got a diagnosis today of Bulbar onset early ALS (possible on the chart), slow progression. The doctor said she was "without a doubt sure" this was the correct diagnosis but we are free to get a second opinion.
We are both in shock, too much so right now to be in denial or anger even.
My question is for anyone's advice as to what I can do right now for him. He's not really talking about anything, just to say it doesn't seem real. I am getting together his file to send for a second opinion, more for something to do than any real hope. I find his voice harder to understand and will have to address this with our daughter but right now I'm numb.
Any suggestions as to what would help him? I can't begin to imagine what he is going through inside, thinking about himself and us. He knows I will do anything - I've told him, but anything concrete that those diagnosed found helpful from their spouses and families? We're not religious and I'm sure that would be a comfort.
Thank you in advance,
Perplexed (and likely to remain so for a long time)
Any of you who read my post on "Do I have ALS" know my husband got a diagnosis today of Bulbar onset early ALS (possible on the chart), slow progression. The doctor said she was "without a doubt sure" this was the correct diagnosis but we are free to get a second opinion.
We are both in shock, too much so right now to be in denial or anger even.
My question is for anyone's advice as to what I can do right now for him. He's not really talking about anything, just to say it doesn't seem real. I am getting together his file to send for a second opinion, more for something to do than any real hope. I find his voice harder to understand and will have to address this with our daughter but right now I'm numb.
Any suggestions as to what would help him? I can't begin to imagine what he is going through inside, thinking about himself and us. He knows I will do anything - I've told him, but anything concrete that those diagnosed found helpful from their spouses and families? We're not religious and I'm sure that would be a comfort.
Thank you in advance,
Perplexed (and likely to remain so for a long time)