Mariejan
Member
- Joined
- Nov 2, 2018
- Messages
- 17
- Reason
- Learn about ALS
- Country
- Us
- State
- Oregon
- City
- Portland
My husband started out with a weird sensation in the middle of his back with mild pain starting around August. He also started to get numbness and tingling all down the left side of his body. He had 3 MRI’s done and there weren’t any lesions (he was being tested for MS) but did show a very small bulging disc. He was in PT but the therapists thought what he was experiencing wasn’t related to a bulging disc because of it being so small but more of something going along in his neck.
All while being terrified of an MS diagnoses, his numbness and tingling went away but he still had a sore area in his back and just didn’t feel right and still hasn’t. He stopped PT. About 3 weeks ago came the muscle twitching on his left side of his body. Since then it’s become more frequent and occasionally happens on his right side of the body. He had an EMG done and it showed fasciculations and also it showed there wasn’t a signal in his right Achilles’ tendon. He did have a bunion surgery last year and his Achilles repaired. The doctor who did the EMG said it’s common to see that in the ankle area.
Anyways, he’s now put at a low risk for ALS and now he’s absolutely distraught. From seeing him shed just a few tears during a funeral, he now SOBS multiple times a day. The last few days he’s been clearing his throat very frequently and feels like he can’t take a deep breath in, or feels like he can’t breathe in as far as he used to. He also feels a little pain when he lays on his left side and his muscles (mostly in his calf) keep cramping and tighting up. He’s been referred to an ALS specialist to see what exactly is going on. We are both a complete wreck. He’s 35 with 2 small kids.
All while being terrified of an MS diagnoses, his numbness and tingling went away but he still had a sore area in his back and just didn’t feel right and still hasn’t. He stopped PT. About 3 weeks ago came the muscle twitching on his left side of his body. Since then it’s become more frequent and occasionally happens on his right side of the body. He had an EMG done and it showed fasciculations and also it showed there wasn’t a signal in his right Achilles’ tendon. He did have a bunion surgery last year and his Achilles repaired. The doctor who did the EMG said it’s common to see that in the ankle area.
Anyways, he’s now put at a low risk for ALS and now he’s absolutely distraught. From seeing him shed just a few tears during a funeral, he now SOBS multiple times a day. The last few days he’s been clearing his throat very frequently and feels like he can’t take a deep breath in, or feels like he can’t breathe in as far as he used to. He also feels a little pain when he lays on his left side and his muscles (mostly in his calf) keep cramping and tighting up. He’s been referred to an ALS specialist to see what exactly is going on. We are both a complete wreck. He’s 35 with 2 small kids.