juliesmile
Active member
- Joined
- Feb 20, 2008
- Messages
- 61
- Reason
- Loved one DX
- Diagnosis
- 03/2008
- Country
- US
- State
- CA
- City
- Borrego Springs
We got out Dx on Monday. I Honestly wasn't expecting a diagnosed so fast. So many people seem to be in limbo for so long on this website. He has significant atrophy and weakness in his left leg, fasiculations in legs, arms, chest, back, belly. Showing weakness in right leg, weight loss and fatigue.
Is there any chance the Dr. was just too hasty? He did rule out autoimmune with bloodtests both ANA and the Athena Bloodwork, did MRI of lower lumbar area, and of course endless EMG/NCS tests, but nothing else. Is there more to test for?
This has been so hard telling his family, my family, friends etc. Everytime you tell the story you basically have to re-live the reality of what is going to happen. I just want this part to be over with so we can just go about the business of living. Im am so emotionally tattered. We spot each other on who gets to be the one crying. When he is in need, I manage to find strength to comfort from some hidden sourse I never knew I had, and when I can't bear it any longer he comes to my rescue with all the strength he can muster. We are such an incredible couple.
This is so hard.
Julie
Is there any chance the Dr. was just too hasty? He did rule out autoimmune with bloodtests both ANA and the Athena Bloodwork, did MRI of lower lumbar area, and of course endless EMG/NCS tests, but nothing else. Is there more to test for?
This has been so hard telling his family, my family, friends etc. Everytime you tell the story you basically have to re-live the reality of what is going to happen. I just want this part to be over with so we can just go about the business of living. Im am so emotionally tattered. We spot each other on who gets to be the one crying. When he is in need, I manage to find strength to comfort from some hidden sourse I never knew I had, and when I can't bear it any longer he comes to my rescue with all the strength he can muster. We are such an incredible couple.
This is so hard.
Julie