AdBlock Detected

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience and to help support our community please take a moment to disable your AdBlocker.

Status
Not open for further replies.

Julie Bob

New member
Joined
Feb 13, 2011
Messages
6
Country
ll
State
lll
Hi,

I'd like to know if advanced ALS patients usually are hunched back, like their shoulders are pulled forward? One of my uncles has many symptoms that make me suspect ALS (extreme loss weight, out of breath when he talks, fasciculations all over his body, cramping, twitches, extreme fatigue & weakness).

I just saw him today and his center of gravity is not what it normally was, his shoulders and upper torso look like they are being pulled forward.

He's 70 but he looks like he's 90, he's so skinny and weak. It breaks my heart to see him this way. He saw many specialists and no one has mentioned ALS. He had a Lyme test done and it came back positive. I know a few people who's Lyme eventually turned into ALS. When it's addressed quickly with antibiotics, the progression of Lyme-induced ALS can sometimes be halted, but not in advanced cases, and I fear my uncle's condition is progressing very fast.

Thanks for your input,

Julie

PS: English is not my mother tongue, so pardon my weird syntax.
 

abbas child

Very helpful member
Joined
Feb 29, 2008
Messages
2,159
Reason
PALS
Diagnosis
07/2007
Country
US
State
Maryland
Hi Julie,

Your Uncle has lost a lot of trunk and neck strength. He needs to sit in a wheelchair that tilts or in a recliner. You are right about the body tilting forward (or sideways) without support. I'm so sorry for his Lyme Disease--it must be miserable for him. It does sound advanced.
 

abbas child

Very helpful member
Joined
Feb 29, 2008
Messages
2,159
Reason
PALS
Diagnosis
07/2007
Country
US
State
Maryland
Julie, you're welcome--I wish I could tell you something that would help him, and am so very sorry for his condition. And, your English is very good.

I hope he is able to get the right kind of wheelchair to make him more comfortable.

Ann
 
Status
Not open for further replies.
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

I've Disabled AdBlock