janicebuf
Active member
- Joined
- Jul 6, 2005
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- east amherst
Hi Everyone, My name is Janice and this may come as a shock to some
of you but here goes:
I am a 45 year old married mom of two great kids. I have had a lot
of tragedy in my family; my sister died at age 41 of breast cancer, I
have lost 25 family members to ALS, including my dad at 57. My
brother presently has the disease (47) and is home on a ventilator.
My uncle was just diagnosed a few months ago as well. I am not
telling you these things for sympathy. I am telling you these things
because I know and experienced tragedy first hand. The one thing I
have NEVER LOST is my sense of humor! People are amazed how I am
able to keep a positive attitude with my brother's condition and with
the loss's in my life. We have choices to make and I have always
chosen the happy road. I recovered from panic disorder and
personally suffer from ulcerative colitis, an inflammatory bowel
disease. So why the post? Because I know first hand how you feel
and I invite you to email me if anyone is interested in receiving my
monthly newsletter that I recently started. It will focus on all
things positive. I am in the process of putting together a program in
dealing with adversity's in our lives using humor, hope, happiness.
Which by the way is the name of my program. I received a call today
from the patient services director of ALSA and look forward to being
a positive voice for all. God Bless!
of you but here goes:
I am a 45 year old married mom of two great kids. I have had a lot
of tragedy in my family; my sister died at age 41 of breast cancer, I
have lost 25 family members to ALS, including my dad at 57. My
brother presently has the disease (47) and is home on a ventilator.
My uncle was just diagnosed a few months ago as well. I am not
telling you these things for sympathy. I am telling you these things
because I know and experienced tragedy first hand. The one thing I
have NEVER LOST is my sense of humor! People are amazed how I am
able to keep a positive attitude with my brother's condition and with
the loss's in my life. We have choices to make and I have always
chosen the happy road. I recovered from panic disorder and
personally suffer from ulcerative colitis, an inflammatory bowel
disease. So why the post? Because I know first hand how you feel
and I invite you to email me if anyone is interested in receiving my
monthly newsletter that I recently started. It will focus on all
things positive. I am in the process of putting together a program in
dealing with adversity's in our lives using humor, hope, happiness.
Which by the way is the name of my program. I received a call today
from the patient services director of ALSA and look forward to being
a positive voice for all. God Bless!